Re: new and question regarding dr. in Michigan

[Guest guest]

Donna

Welcome to the group. I am sorry you are experiencing symptoms.

I live in , Michigan. There are many in Michigan.

Most of us see either someone at U. of M. or one of the MDA clinics.

Where are you located?

There was a Dr. Levin at U of M, but I don't know if it is the same person.

laurie

> Hi everyone,

>

> I am brand new to , but have been posting to the mito board

> for a few months now. My son Craig, who is 8, was diagnosed through

> muscle biopsy by Dr. Cohen with unspecified mito. His 6 year old

> brother Dalton has had some signs, but no diagnosis yet. Both have

> been helped a lot by Levocarnitine and a mito cocktail.

>

> In the past year or so, it has become apparent that something is

> going on with me too. I went to a neurologist recently who thought

> I had MS, but my MRI and all my blood work was normal (just as it

> was for Craig).

>

> I am trying to get an appt. with Dr. Cohen for myself (he is no

> longer doing follow up on Craig due to his huge caseload). I also

> called the UMDF and asked about neurologists in Michigan who treat

> adults. They list a Dr. Levin in Saginaw. He is listed as

> seeing adults and children.

>

> Is anyone familar with Dr. Levin in Saginaw, Michigan?

>

> Thanks so much for your help!!

>

> Donna H.

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

are not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

>

>

[Guest guest]

HI Laurie,

Thanks for the welcome. I had no idea there were many of us in

Michigan! I live in Orion (near Rochester or Pontiac, MI). Could you

tell me some of the doctors at U of M or the MDA clinics? Do you

know if any of them see adults and children? (I need a new

neurologist for the kids too.) I am willing to travel as far as

necessary for a good doctor. (Good to me means someone who will

confer with Dr. Cohen for help managing mito.)

Dr. Levin is in Saginaw, and I did get some info on him from someone

in the Mito group.

THANKS!

Donna H.

> > Hi everyone,

> >

> > I am brand new to , but have been posting to the mito

board

> > for a few months now. My son Craig, who is 8, was diagnosed

through

> > muscle biopsy by Dr. Cohen with unspecified mito. His 6 year old

> > brother Dalton has had some signs, but no diagnosis yet. Both

have

> > been helped a lot by Levocarnitine and a mito cocktail.

> >

> > In the past year or so, it has become apparent that something is

> > going on with me too. I went to a neurologist recently who

thought

> > I had MS, but my MRI and all my blood work was normal (just as it

> > was for Craig).

> >

> > I am trying to get an appt. with Dr. Cohen for myself (he is no

> > longer doing follow up on Craig due to his huge caseload). I

also

> > called the UMDF and asked about neurologists in Michigan who

treat

> > adults. They list a Dr. Levin in Saginaw. He is listed

as

> > seeing adults and children.

> >

> > Is anyone familar with Dr. Levin in Saginaw, Michigan?

> >

> > Thanks so much for your help!!

> >

> > Donna H.

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

contained herein are not necessarily those of the list moderators.

The author of this e mail is entirely responsible for its content.

List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding

changes in their own treatment.

> >

> > Personal attacks are not permitted on the list and anyone who

sends one is automatically moderated or removed depending on the

severity of the attack.

> >

> >

[Guest guest]

Donna

Kids and adults are seen in separate clinics at U of M.

laurie

> HI Laurie,

>

> Thanks for the welcome. I had no idea there were many of us in

> Michigan! I live in Orion (near Rochester or Pontiac, MI). Could you

> tell me some of the doctors at U of M or the MDA clinics? Do you

> know if any of them see adults and children? (I need a new

> neurologist for the kids too.) I am willing to travel as far as

> necessary for a good doctor. (Good to me means someone who will

> confer with Dr. Cohen for help managing mito.)

>

> Dr. Levin is in Saginaw, and I did get some info on him from someone

> in the Mito group.

>

> THANKS!

>

> Donna H.

>

>

> > > Hi everyone,

> > >

> > > I am brand new to , but have been posting to the mito

> board

> > > for a few months now. My son Craig, who is 8, was diagnosed

> through

> > > muscle biopsy by Dr. Cohen with unspecified mito. His 6 year old

> > > brother Dalton has had some signs, but no diagnosis yet. Both

> have

> > > been helped a lot by Levocarnitine and a mito cocktail.

> > >

> > > In the past year or so, it has become apparent that something is

> > > going on with me too. I went to a neurologist recently who

> thought

> > > I had MS, but my MRI and all my blood work was normal (just as it

> > > was for Craig).

> > >

> > > I am trying to get an appt. with Dr. Cohen for myself (he is no

> > > longer doing follow up on Craig due to his huge caseload). I

> also

> > > called the UMDF and asked about neurologists in Michigan who

> treat

> > > adults. They list a Dr. Levin in Saginaw. He is listed

> as

> > > seeing adults and children.

> > >

> > > Is anyone familar with Dr. Levin in Saginaw, Michigan?

> > >

> > > Thanks so much for your help!!

> > >

> > > Donna H.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Medical advice, information, opinions, data and statements

> contained herein are not necessarily those of the list moderators.

> The author of this e mail is entirely responsible for its content.

> List members are reminded of their responsibility to evaluate the

> content of the postings and consult with their physicians regarding

> changes in their own treatment.

> > >

> > > Personal attacks are not permitted on the list and anyone who

> sends one is automatically moderated or removed depending on the

> severity of the attack.

> > >

> > >

[Guest guest]

Hi Donna, I used to live in Oakland Twp. and grew up in Rochester.

I'm currently in Ann Arbor. I've used the MDA clinic in Farmington

Hills once ( Dr. Simpson ) and my docs are currenly all at UM. I've

been very satisfied with UM overall, but the general knowledge of Mito

is severely lacking. I have a lot of docs, in a lot of specialties,

but I have to be the expert most of the time on the Mito issues. I'd

love to have someone like Dr. Cohen or Dr. Shoffner etc... but my

neuro doc researches Juvenile Diabetes and ALS primarily. I would

still recommend them and I'm thankful that my primary care doc has

another patient with Mito. She seems to be more than willing to

listen and go with my recommendations regarding specific needs. I

think there are very few places where one can go for Mito experts. If

there is any way you can see Dr. Cohen, I would highly recommend going

to CCF. If not, you might want to try the MDA clinic that I

mentioned. Good luck and hang in there !

Bug

[Guest guest]

Thank you so much for the helpful reply.

Donna H.

- In , " venomvw " wrote:

> Hi Donna, I used to live in Oakland Twp. and grew up in

Rochester.

> I'm currently in Ann Arbor. I've used the MDA clinic in

Farmington

> Hills once ( Dr. Simpson ) and my docs are currenly all at UM.

I've

> been very satisfied with UM overall, but the general knowledge of

Mito

> is severely lacking. I have a lot of docs, in a lot of

specialties,

> but I have to be the expert most of the time on the Mito issues.

I'd

> love to have someone like Dr. Cohen or Dr. Shoffner etc... but my

> neuro doc researches Juvenile Diabetes and ALS primarily. I would

> still recommend them and I'm thankful that my primary care doc has

> another patient with Mito. She seems to be more than willing to

> listen and go with my recommendations regarding specific needs. I

> think there are very few places where one can go for Mito

experts. If

> there is any way you can see Dr. Cohen, I would highly recommend

going

> to CCF. If not, you might want to try the MDA clinic that I

> mentioned. Good luck and hang in there !

>

> Bug