Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 I think the reason I started using 'form of dwarfism' with people was to keep them from incessantly repeating 'he'll grow out of it'. Now I think he might, but that's never guaranteed, and I haven't wanted my son's expectations of a good future to hinge on 'growing out of it'. Yet I am very grateful for the growth hormone alleviating the severity of the struggles he was having with his size. That was my struggle with LPA - I loved the people, but since most of them couldn't use growth hormone, there was a different mindset. Well, I do generally use the word 'growth disorder', and I don't always pick my terms perfectly for the situation - I guess that's the 'being human' disorder (or maybe 'foot in mouth' is more descriptive)! Inga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Inga - I am 100% with you on this one!!!! It used to drive me nuts when people would commiserate and then say " oh, she'll grow out of it. " Or " I was really short as a child and then grew a whole lot " , etc. So I also use either " she has a form of dwarfism " in those times to really get the point across, or I use " she has a genetic disorder that causes her to not grow as well.... " In general passing conversations, I use the more common " she has a growth disorder. " I think anything is fine! P.S. How is Tim doing? Make sure to see my question to you in a prior email I just posted. > I think the reason I started using 'form of dwarfism' with people was to > keep them from incessantly repeating 'he'll grow out of it'. Now I think > he might, but that's never guaranteed, and I haven't wanted my son's > expectations of a good future to hinge on 'growing out of it'. Yet I am > very grateful for the growth hormone alleviating the severity of the > struggles he was having with his size. That was my struggle with LPA - I > loved the people, but since most of them couldn't use growth hormone, there > was a different mindset. Well, I do generally use the word 'growth > disorder', and I don't always pick my terms perfectly for the situation - I > guess that's the 'being human' disorder (or maybe 'foot in mouth' is more > descriptive)! > > Inga Quote Link to comment Share on other sites More sharing options...
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