Re: Back From Cleveland Clinic

[Guest guest]

I'm glad things went well for you. I knew it would.

I was told I would be under a general for my biopsy at CCF, but ended

up having a spinal instead. The anesthesiologist's wife has mild mito

and I had had some previous anesthesia problems, so he felt this was a

better choice. Dr. Cohen tries to make sure the anesthesiologist knows

what things not to use, but take the article on what can and can't be

used. CCF is a large place and often functions like one.

laurie

> Hey Everyone,

>

> I am back from Cleveland Clinic and Dr. Cohen. The appointment went well.

Although Dr. Cohen was pretty quiet and didn't do a lot on a physical exam

standpoint. He mostly read Dr. Simpson's reprt and asked me questions.

>

> He is scheduling me for a muscle biopsy probably not until September because

there are now 15 people ahead of me for it and I also need to be off my CoQ10

for a month to check and see if I may have a CoQ0 deficiency. My cousin has a

CoQ10 deficiency so he wants to see if there are parallels there.

>

> He also had me get a whole new series of blood tests while I was there. Most

of the tests I have not had before...metabolic panel, and a bunch others I can't

remember.

>

> Anyway, I am not nervous now, other than he told me that I will be under

general anasthesia for the biopsy instead of local. He said they are going to

take about a two to 3 inch piece of muscle tissue out of my thigh. My last

biopsy as most of you know didn't go well, the nice after shock of the staff

infection I recieved and all. But then again, Cleveland Clinic is a more

reputable organization than Ohio State.

>

> Anyway, I am very tired from the trip. We drove about 10 hours yesterday so I

need to rest a lot today. I will post more info as I get it.

>

> It is good to be home.

>

>

> In Christ,

>

> McCombs

> 2 Cor 1:3-4

>

>

[Guest guest]

,

I am glad things went well. Lucky you that you get a general ansethesia for your

muscle biopsy. I had only local for both of mine and the last one was from my

right thigh which REALLY hurt when they did it but as far as postop discomfort

there was very little. Good luck!

McCombs aarondmccombs29@...> wrote:

Hey Everyone,

I am back from Cleveland Clinic and Dr. Cohen. The appointment went well.

Although Dr. Cohen was pretty quiet and didn't do a lot on a physical exam

standpoint. He mostly read Dr. Simpson's reprt and asked me questions.

He is scheduling me for a muscle biopsy probably not until September because

there are now 15 people ahead of me for it and I also need to be off my CoQ10

for a month to check and see if I may have a CoQ0 deficiency. My cousin has a

CoQ10 deficiency so he wants to see if there are parallels there.

He also had me get a whole new series of blood tests while I was there. Most of

the tests I have not had before...metabolic panel, and a bunch others I can't

remember.

Anyway, I am not nervous now, other than he told me that I will be under general

anasthesia for the biopsy instead of local. He said they are going to take

about a two to 3 inch piece of muscle tissue out of my thigh. My last biopsy as

most of you know didn't go well, the nice after shock of the staff infection I

recieved and all. But then again, Cleveland Clinic is a more reputable

organization than Ohio State.

Anyway, I am very tired from the trip. We drove about 10 hours yesterday so I

need to rest a lot today. I will post more info as I get it.

It is good to be home.

In Christ,

McCombs

2 Cor 1:3-4

[Guest guest]

, as you have read I finally am able to get a referral to the MDA Clinic at

KU in Kansas City, MO. I wish you good luck with your biopsy. I'll watch the

posts for when you go back. Good Luck and God Bless, Dolores

McCombs aarondmccombs29@...> wrote:Hey Everyone,

I am back from Cleveland Clinic and Dr. Cohen. The appointment went well.

Although Dr. Cohen was pretty quiet and didn't do a lot on a physical exam

standpoint. He mostly read Dr. Simpson's reprt and asked me questions.

He is scheduling me for a muscle biopsy probably not until September because

there are now 15 people ahead of me for it and I also need to be off my CoQ10

for a month to check and see if I may have a CoQ0 deficiency. My cousin has a

CoQ10 deficiency so he wants to see if there are parallels there.

He also had me get a whole new series of blood tests while I was there. Most of

the tests I have not had before...metabolic panel, and a bunch others I can't

remember.

Anyway, I am not nervous now, other than he told me that I will be under general

anasthesia for the biopsy instead of local. He said they are going to take

about a two to 3 inch piece of muscle tissue out of my thigh. My last biopsy as

most of you know didn't go well, the nice after shock of the staff infection I

recieved and all. But then again, Cleveland Clinic is a more reputable

organization than Ohio State.

Anyway, I am very tired from the trip. We drove about 10 hours yesterday so I

need to rest a lot today. I will post more info as I get it.

It is good to be home.

In Christ,

McCombs

2 Cor 1:3-4

[Guest guest]

I had local anesthesia for my fresh muscle biopsy, I was told that

Dr. Shoffner's patients usually get general if a child or local if an

adult.

It started to hurt during the muscle biopsy surgery, when the

pediatric neurosurgeon was almost done, but I complained and they

immediately put some topical anesthetic on it (flooded it with some

anesthetic solution, I don't know what) and the pain decreased a lot.

Take care,

RH

> Hey Everyone,

>

> I am back from Cleveland Clinic and Dr. Cohen. The appointment

went well. Although Dr. Cohen was pretty quiet and didn't do a lot

on a physical exam standpoint. He mostly read Dr. Simpson's reprt

and asked me questions.

>

> He is scheduling me for a muscle biopsy probably not until

September because there are now 15 people ahead of me for it and I

also need to be off my CoQ10 for a month to check and see if I may

have a CoQ0 deficiency. My cousin has a CoQ10 deficiency so he wants

to see if there are parallels there.

>

> He also had me get a whole new series of blood tests while I was

there. Most of the tests I have not had before...metabolic panel,

and a bunch others I can't remember.

>

> Anyway, I am not nervous now, other than he told me that I will be

under general anasthesia for the biopsy instead of local. He said

they are going to take about a two to 3 inch piece of muscle tissue

out of my thigh. My last biopsy as most of you know didn't go well,

the nice after shock of the staff infection I recieved and all. But

then again, Cleveland Clinic is a more reputable organization than

Ohio State.

>

> Anyway, I am very tired from the trip. We drove about 10 hours

yesterday so I need to rest a lot today. I will post more info as I

get it.

>

> It is good to be home.

>

>

> In Christ,

>

> McCombs

> 2 Cor 1:3-4

>

>