To Judith

[Guest guest]

Thanks for your support with Max. It was nice to read that you just

let this dwarf/growth disorder thing pass over. I'm even sorry I

posted it!!! But I know so well how kids perceive themselves and we

can all want to educate the public and make certain terms " pc, " but

I will not do it at my child's expense. Calling him a dwarf would

really make things complicated and a real mess. As if they aren't

already with Max.

Now, back to Max being sick, it is the usual thing. The anxiety of

returning to school sparked the physical reaction and now we have to

tackle the anxiety in order to deal with the physical. One thing we

have going on our side is that Max HATES using the j-tube. I can

get him to eat orally by just suggesting that he give himself a

bolus through the j port. He is 15 and can make his own decisions

where appropriate. It is so important to let him feel in control.

(I am so TIRED of being an amateur psychologist. Thank goodness we

have a real one who supports me and Max along the way. We think so

much alike that it is just amazing! She will call to ask about Max

and then we talk about what I am saying and doing with Max and she

agrees all the way!)

I'm hoping that Max will go to school for at least half the day

tomorrow. I'll probably have him go at noon after I get home from

teaching kindergarten. He may react better knowing that he is only

going for a couple of hours and that I am home if he needs to leave.

Jodi