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Re: Re: Joanne: info about Dr. SHoffner in Atlanta

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Since you live in California, you might consider setting an appointment with Dr.

Boles in LA or Dr. Wallace's newly established group in Irvine. I don't know

how far either of these locations would be from your home, but alot closer than

Atlanta.

To obtain an appointment with Dr. SHoffner it is best to have your physician

send a well written clinical summary with copies of the diagnostic lab reports

to his attention. As a potential patient you can also do this (and might

actually send significant reports that your physician might not include). He

will review the records, call to discuss them and then determine if an

appointment is indicated. The nbext step in the process it to obtain insurance

approval for the visit and fresh muscle biopsy. His office staff will help with

that process. Once insurance authorization is obtained they will arrange all

of the necessary appointments.

Kathleen Robins kdrobins@...> wrote:

Hi, Joanne-

I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14

years, only got the mito diagnosis last week- so I¹m pretty new to this.

I¹d love any information you can give me. I¹m having nightmares, literally,

about my kids (ages 6 & 8)

Thanks, Kathleen

> I honestly don't know if Dr. Cohen is seeing new adult patients. The last I

> heard there was a 18 to 24 month wait for a new pediatric patients diagnostic

> consult for mito. It is far easier to get an appointment with Dr. SHoffner in

> Atlanta. I can tell you that process if you are interested.

>

> What part of the US do you live in?

>

> kafeeninacup kdrobins@...> wrote:

> Laurie and others-

>

> How did you get connected to Dr. Cohen? Through a referral by your home

> Neurologist?

> Through MDA?

>

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Does Dr Boles take adult patients. I though I heard that he didn't. I

didn't know about dr. Wallace. Tell me more about him. The drive is about

8 hours, but a lot closer than GA. Does either of them do fresh biopsies?

Thanks

Joanne

Re: Re: Joanne: info about Dr. SHoffner in Atlanta

Since you live in California, you might consider setting an appointment with

Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I don't

know how far either of these locations would be from your home, but alot

closer than Atlanta.

To obtain an appointment with Dr. SHoffner it is best to have your

physician send a well written clinical summary with copies of the diagnostic

lab reports to his attention. As a potential patient you can also do this

(and might actually send significant reports that your physician might not

include). He will review the records, call to discuss them and then

determine if an appointment is indicated. The nbext step in the process it

to obtain insurance approval for the visit and fresh muscle biopsy. His

office staff will help with that process. Once insurance authorization is

obtained they will arrange all of the necessary appointments.

Kathleen Robins kdrobins@...> wrote:

Hi, Joanne-

I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14

years, only got the mito diagnosis last week- so I¹m pretty new to this.

I¹d love any information you can give me. I¹m having nightmares, literally,

about my kids (ages 6 & 8)

Thanks, Kathleen

> I honestly don't know if Dr. Cohen is seeing new adult patients. The

> last I heard there was a 18 to 24 month wait for a new pediatric

> patients diagnostic consult for mito. It is far easier to get an

> appointment with Dr. SHoffner in Atlanta. I can tell you that process if

you are interested.

>

> What part of the US do you live in?

>

> kafeeninacup kdrobins@...> wrote:

> Laurie and others-

>

> How did you get connected to Dr. Cohen? Through a referral by your

> home Neurologist?

> Through MDA?

>

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Share on other sites

I saw Dr Boles when I was 24 yrs old, but that was about 4 yrs ago and he

said I was close enough to the age limit that they could squeeze me in. That

leads me to the impression that he doesn't typically see people too much older

than early twenties, but it still may be worth looking into. There are so few

mito physicians out there that the ones who are really knowledgeable all seem

to be pediatric.

Malisa

In a message dated 2/7/2006 9:10:02 A.M. Eastern Standard Time,

servedogmom@... writes:

I don't know specifically about Dr. Boles and adult patients. Maybe someone

that has seen him could say. I know his research interest is MIDS and you

can't know of maternal inheritance without including, at the very least, the

mother.

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I don't know specifically about Dr. Boles and adult patients. Maybe someone that

has seen him could say. I know his research interest is MIDS and you can't know

of maternal inheritance without including, at the very least, the mother.

Dr. Wallace is at UC Irvine. I don't know if his lab is up and running but

heard it was supposed to be this year. Also heard that he is or will be working

in conjunction with a clinical practioner. It would be worth calling his office

to inquire. He and Dr. Shoffner were originally partners at Emory in GA.

Dr. Shoffner definitely does see adults. Bill Rhead and Peltier in

Milwaukee also see adults but they can not do a fresh muscle biopsies.

Crook crookpj@...> wrote:

Does Dr Boles take adult patients. I though I heard that he didn't. I

didn't know about dr. Wallace. Tell me more about him. The drive is about

8 hours, but a lot closer than GA. Does either of them do fresh biopsies?

Thanks

Joanne

Re: Re: Joanne: info about Dr. SHoffner in Atlanta

Since you live in California, you might consider setting an appointment with

Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I don't

know how far either of these locations would be from your home, but alot

closer than Atlanta.

To obtain an appointment with Dr. SHoffner it is best to have your

physician send a well written clinical summary with copies of the diagnostic

lab reports to his attention. As a potential patient you can also do this

(and might actually send significant reports that your physician might not

include). He will review the records, call to discuss them and then

determine if an appointment is indicated. The nbext step in the process it

to obtain insurance approval for the visit and fresh muscle biopsy. His

office staff will help with that process. Once insurance authorization is

obtained they will arrange all of the necessary appointments.

Kathleen Robins kdrobins@...> wrote:

Hi, Joanne-

I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14

years, only got the mito diagnosis last week- so I¹m pretty new to this.

I¹d love any information you can give me. I¹m having nightmares, literally,

about my kids (ages 6 & 8)

Thanks, Kathleen

> I honestly don't know if Dr. Cohen is seeing new adult patients. The

> last I heard there was a 18 to 24 month wait for a new pediatric

> patients diagnostic consult for mito. It is far easier to get an

> appointment with Dr. SHoffner in Atlanta. I can tell you that process if

you are interested.

>

> What part of the US do you live in?

>

> kafeeninacup kdrobins@...> wrote:

> Laurie and others-

>

> How did you get connected to Dr. Cohen? Through a referral by your

> home Neurologist?

> Through MDA?

>

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I may be wrong, but believe Dr. Wallace is a PHD and not an MD. He has

always handled the research and never seen patients to my knowledge.

This is being dragged from the bottom of my brain, so let me know if I

am wrong.

laurie

> I don't know specifically about Dr. Boles and adult patients. Maybe someone

> that has seen him could say. I know his research interest is MIDS and you

> can't know of maternal inheritance without including, at the very least, the

> mother.

>

> Dr. Wallace is at UC Irvine. I don't know if his lab is up and running

> but heard it was supposed to be this year. Also heard that he is or will be

> working in conjunction with a clinical practioner. It would be worth

> calling his office to inquire. He and Dr. Shoffner were originally partners

> at Emory in GA.

>

> Dr. Shoffner definitely does see adults. Bill Rhead and Peltier in

> Milwaukee also see adults but they can not do a fresh muscle biopsies.

>

>

> Crook crookpj@...> wrote:

> Does Dr Boles take adult patients. I though I heard that he didn't. I

> didn't know about dr. Wallace. Tell me more about him. The drive is about

> 8 hours, but a lot closer than GA. Does either of them do fresh biopsies?

> Thanks

> Joanne

>

> Re: Re: Joanne: info about Dr. SHoffner in Atlanta

>

> Since you live in California, you might consider setting an appointment

> with

> Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I

> don't

> know how far either of these locations would be from your home, but alot

> closer than Atlanta.

>

> To obtain an appointment with Dr. SHoffner it is best to have your

> physician send a well written clinical summary with copies of the

> diagnostic

> lab reports to his attention. As a potential patient you can also do this

> (and might actually send significant reports that your physician might not

> include). He will review the records, call to discuss them and then

> determine if an appointment is indicated. The nbext step in the process it

> to obtain insurance approval for the visit and fresh muscle biopsy. His

> office staff will help with that process. Once insurance authorization is

> obtained they will arrange all of the necessary appointments.

> Kathleen Robins kdrobins@...> wrote:

> Hi, Joanne-

>

> I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14

> years, only got the mito diagnosis last week- so I¹m pretty new to this.

> I¹d love any information you can give me. I¹m having nightmares,

> literally,

> about my kids (ages 6 & 8)

>

> Thanks, Kathleen

>

>

>

> > I honestly don't know if Dr. Cohen is seeing new adult patients. The

> > last I heard there was a 18 to 24 month wait for a new pediatric

> > patients diagnostic consult for mito. It is far easier to get an

> > appointment with Dr. SHoffner in Atlanta. I can tell you that process if

> you are interested.

> >

> > What part of the US do you live in?

> >

> > kafeeninacup kdrobins@...> wrote:

> > Laurie and others-

> >

> > How did you get connected to Dr. Cohen? Through a referral by your

> > home Neurologist?

> > Through MDA?

> >

>

>

>

>

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