Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Since you live in California, you might consider setting an appointment with Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I don't know how far either of these locations would be from your home, but alot closer than Atlanta. To obtain an appointment with Dr. SHoffner it is best to have your physician send a well written clinical summary with copies of the diagnostic lab reports to his attention. As a potential patient you can also do this (and might actually send significant reports that your physician might not include). He will review the records, call to discuss them and then determine if an appointment is indicated. The nbext step in the process it to obtain insurance approval for the visit and fresh muscle biopsy. His office staff will help with that process. Once insurance authorization is obtained they will arrange all of the necessary appointments. Kathleen Robins kdrobins@...> wrote: Hi, Joanne- I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14 years, only got the mito diagnosis last week- so I¹m pretty new to this. I¹d love any information you can give me. I¹m having nightmares, literally, about my kids (ages 6 & 8) Thanks, Kathleen > I honestly don't know if Dr. Cohen is seeing new adult patients. The last I > heard there was a 18 to 24 month wait for a new pediatric patients diagnostic > consult for mito. It is far easier to get an appointment with Dr. SHoffner in > Atlanta. I can tell you that process if you are interested. > > What part of the US do you live in? > > kafeeninacup kdrobins@...> wrote: > Laurie and others- > > How did you get connected to Dr. Cohen? Through a referral by your home > Neurologist? > Through MDA? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Thank you, Joanne! Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2006 Report Share Posted February 6, 2006 Does Dr Boles take adult patients. I though I heard that he didn't. I didn't know about dr. Wallace. Tell me more about him. The drive is about 8 hours, but a lot closer than GA. Does either of them do fresh biopsies? Thanks Joanne Re: Re: Joanne: info about Dr. SHoffner in Atlanta Since you live in California, you might consider setting an appointment with Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I don't know how far either of these locations would be from your home, but alot closer than Atlanta. To obtain an appointment with Dr. SHoffner it is best to have your physician send a well written clinical summary with copies of the diagnostic lab reports to his attention. As a potential patient you can also do this (and might actually send significant reports that your physician might not include). He will review the records, call to discuss them and then determine if an appointment is indicated. The nbext step in the process it to obtain insurance approval for the visit and fresh muscle biopsy. His office staff will help with that process. Once insurance authorization is obtained they will arrange all of the necessary appointments. Kathleen Robins kdrobins@...> wrote: Hi, Joanne- I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14 years, only got the mito diagnosis last week- so I¹m pretty new to this. I¹d love any information you can give me. I¹m having nightmares, literally, about my kids (ages 6 & 8) Thanks, Kathleen > I honestly don't know if Dr. Cohen is seeing new adult patients. The > last I heard there was a 18 to 24 month wait for a new pediatric > patients diagnostic consult for mito. It is far easier to get an > appointment with Dr. SHoffner in Atlanta. I can tell you that process if you are interested. > > What part of the US do you live in? > > kafeeninacup kdrobins@...> wrote: > Laurie and others- > > How did you get connected to Dr. Cohen? Through a referral by your > home Neurologist? > Through MDA? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I saw Dr Boles when I was 24 yrs old, but that was about 4 yrs ago and he said I was close enough to the age limit that they could squeeze me in. That leads me to the impression that he doesn't typically see people too much older than early twenties, but it still may be worth looking into. There are so few mito physicians out there that the ones who are really knowledgeable all seem to be pediatric. Malisa In a message dated 2/7/2006 9:10:02 A.M. Eastern Standard Time, servedogmom@... writes: I don't know specifically about Dr. Boles and adult patients. Maybe someone that has seen him could say. I know his research interest is MIDS and you can't know of maternal inheritance without including, at the very least, the mother. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I don't know specifically about Dr. Boles and adult patients. Maybe someone that has seen him could say. I know his research interest is MIDS and you can't know of maternal inheritance without including, at the very least, the mother. Dr. Wallace is at UC Irvine. I don't know if his lab is up and running but heard it was supposed to be this year. Also heard that he is or will be working in conjunction with a clinical practioner. It would be worth calling his office to inquire. He and Dr. Shoffner were originally partners at Emory in GA. Dr. Shoffner definitely does see adults. Bill Rhead and Peltier in Milwaukee also see adults but they can not do a fresh muscle biopsies. Crook crookpj@...> wrote: Does Dr Boles take adult patients. I though I heard that he didn't. I didn't know about dr. Wallace. Tell me more about him. The drive is about 8 hours, but a lot closer than GA. Does either of them do fresh biopsies? Thanks Joanne Re: Re: Joanne: info about Dr. SHoffner in Atlanta Since you live in California, you might consider setting an appointment with Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I don't know how far either of these locations would be from your home, but alot closer than Atlanta. To obtain an appointment with Dr. SHoffner it is best to have your physician send a well written clinical summary with copies of the diagnostic lab reports to his attention. As a potential patient you can also do this (and might actually send significant reports that your physician might not include). He will review the records, call to discuss them and then determine if an appointment is indicated. The nbext step in the process it to obtain insurance approval for the visit and fresh muscle biopsy. His office staff will help with that process. Once insurance authorization is obtained they will arrange all of the necessary appointments. Kathleen Robins kdrobins@...> wrote: Hi, Joanne- I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14 years, only got the mito diagnosis last week- so I¹m pretty new to this. I¹d love any information you can give me. I¹m having nightmares, literally, about my kids (ages 6 & 8) Thanks, Kathleen > I honestly don't know if Dr. Cohen is seeing new adult patients. The > last I heard there was a 18 to 24 month wait for a new pediatric > patients diagnostic consult for mito. It is far easier to get an > appointment with Dr. SHoffner in Atlanta. I can tell you that process if you are interested. > > What part of the US do you live in? > > kafeeninacup kdrobins@...> wrote: > Laurie and others- > > How did you get connected to Dr. Cohen? Through a referral by your > home Neurologist? > Through MDA? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 I may be wrong, but believe Dr. Wallace is a PHD and not an MD. He has always handled the research and never seen patients to my knowledge. This is being dragged from the bottom of my brain, so let me know if I am wrong. laurie > I don't know specifically about Dr. Boles and adult patients. Maybe someone > that has seen him could say. I know his research interest is MIDS and you > can't know of maternal inheritance without including, at the very least, the > mother. > > Dr. Wallace is at UC Irvine. I don't know if his lab is up and running > but heard it was supposed to be this year. Also heard that he is or will be > working in conjunction with a clinical practioner. It would be worth > calling his office to inquire. He and Dr. Shoffner were originally partners > at Emory in GA. > > Dr. Shoffner definitely does see adults. Bill Rhead and Peltier in > Milwaukee also see adults but they can not do a fresh muscle biopsies. > > > Crook crookpj@...> wrote: > Does Dr Boles take adult patients. I though I heard that he didn't. I > didn't know about dr. Wallace. Tell me more about him. The drive is about > 8 hours, but a lot closer than GA. Does either of them do fresh biopsies? > Thanks > Joanne > > Re: Re: Joanne: info about Dr. SHoffner in Atlanta > > Since you live in California, you might consider setting an appointment > with > Dr. Boles in LA or Dr. Wallace's newly established group in Irvine. I > don't > know how far either of these locations would be from your home, but alot > closer than Atlanta. > > To obtain an appointment with Dr. SHoffner it is best to have your > physician send a well written clinical summary with copies of the > diagnostic > lab reports to his attention. As a potential patient you can also do this > (and might actually send significant reports that your physician might not > include). He will review the records, call to discuss them and then > determine if an appointment is indicated. The nbext step in the process it > to obtain insurance approval for the visit and fresh muscle biopsy. His > office staff will help with that process. Once insurance authorization is > obtained they will arrange all of the necessary appointments. > Kathleen Robins kdrobins@...> wrote: > Hi, Joanne- > > I¹m in Northern California, and though I¹ve been diagnosed with CPEO for 14 > years, only got the mito diagnosis last week- so I¹m pretty new to this. > I¹d love any information you can give me. I¹m having nightmares, > literally, > about my kids (ages 6 & 8) > > Thanks, Kathleen > > > > > I honestly don't know if Dr. Cohen is seeing new adult patients. The > > last I heard there was a 18 to 24 month wait for a new pediatric > > patients diagnostic consult for mito. It is far easier to get an > > appointment with Dr. SHoffner in Atlanta. I can tell you that process if > you are interested. > > > > What part of the US do you live in? > > > > kafeeninacup kdrobins@...> wrote: > > Laurie and others- > > > > How did you get connected to Dr. Cohen? Through a referral by your > > home Neurologist? > > Through MDA? > > > > > > Quote Link to comment Share on other sites More sharing options...
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