Re: Tongue weakness/atrophy, speech or swallowing problems?

[Guest guest]

Yes Randall - with regard to tongue am not sure if this is atrophy but for most

of my life have had a really rough looking tongue with big grooves - my mother

says it runs in the family but we have only just found out about the mito. I

have defintiely heard about slurring and speech problems not sure whether this

is due to atrophy or strokelike episodes. Sometimes especially lately I get

tongue tied, and often I have discomfort when swallowing. Re p neck muscles

that is a big problem to me but mostly spasm ie if I sleep with my head tilted

in a certain way I get this massive spasmic headache in back of neck and behind

eyes that lasts a day or two. I also get a tired neck but have heard others

who have this worse - also my mitoneuro mentioned something about some people

using a neck brace so it must be a problem with mito. pamela (melas)

Tongue weakness/atrophy, speech or swallowing problems?

When I asked about tongue weakness and atrophy being associated with Mito

don't believe anyone wrote that they have either of these. Can I infer that Mito

rarely if ever causes problems like tongue atrophy, tongue weakness, speech

problems, e.g. slurring (often due to weak tongue and other muscles) or

swallowing problems? I ask because latest neurologist thinks I have a mild form

of Mito, yet I'm having these problems and think tongue atrophy possibly as

well. Also, anyone have weakness of posterior neck muscles (difficult keeping

head up)?

Thanks,

Randall

[Guest guest]

Randall

Since you are talking about muscles, these would not be uncommon to

see in mito. It isn't something everyone has, but that is true of all

symptoms of mito.

laurie

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> When I asked about tongue weakness and atrophy being associated with Mito

> don't believe anyone wrote that they have either of these. Can I infer that

> Mito rarely if ever causes problems like tongue atrophy, tongue weakness,

> speech problems, e.g. slurring (often due to weak tongue and other muscles)

> or swallowing problems? I ask because latest neurologist thinks I have a

> mild form of Mito, yet I'm having these problems and think tongue atrophy

> possibly as well. Also, anyone have weakness of posterior neck muscles

> (difficult keeping head up)?

>

> Thanks,

>

> Randall

>

>

[Guest guest]

> > When I asked about tongue weakness and atrophy

> being associated with Mito

> > don't believe anyone wrote that they have either

> of these. Can I infer that

> > Mito rarely if ever causes problems like tongue

> atrophy, tongue weakness,

> > speech problems, e.g. slurring (often due to weak

> tongue and other muscles)

> > or swallowing problems?

My son does not have tongue atrophy (that I know of)

but has periodic problems with slurring. He also has

had increasing difficulty swallowing. He's going to be

18 in October and this has been a problem for the last

couple of years. The mito cocktail has made a huge difference.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

Randall, I have had tongue weakness and swallowing difficulties at times.

sometime I feel my speech is slightly impaired when I really don't feel well.

Van Verst tbnkatie@...> wrote:

> > When I asked about tongue weakness and atrophy

> being associated with Mito

> > don't believe anyone wrote that they have either

> of these. Can I infer that

> > Mito rarely if ever causes problems like tongue

> atrophy, tongue weakness,

> > speech problems, e.g. slurring (often due to weak

> tongue and other muscles)

> > or swallowing problems?

My son does not have tongue atrophy (that I know of)

but has periodic problems with slurring. He also has

had increasing difficulty swallowing. He's going to be

18 in October and this has been a problem for the last

couple of years. The mito cocktail has made a huge difference.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

This discussion regarding the tongue is really making me wonder about

something I have experienced for a long time. There are periods where I

have a really hard time talking because I feel like I have a mouthful of

marbles. It comes and goes and the cocktail really decreased the sensation

a lot. I just assumed it came from my deafness (hear with a CI), but maybe

it might muscle issue???

I also have a problem where I get a terrible spasm when swallowing thin

liquids like water. I have to be careful not to drink them too fast as it

really hurts and it is like the liquid is stuck like a chicken bone. In a

couple of seconds my throat relaxes and I am fine again.

Ruth

_____

From: [mailto: ] On Behalf

Of Randall Bosin

Sent: Monday, June 05, 2006 9:50 PM

To:

Subject: Tongue weakness/atrophy, speech or swallowing problems?

When I asked about tongue weakness and atrophy being associated with Mito

don't believe anyone wrote that they have either of these. Can I infer that

Mito rarely if ever causes problems like tongue atrophy, tongue weakness,

speech problems, e.g. slurring (often due to weak tongue and other muscles)

or swallowing problems? I ask because latest neurologist thinks I have a

mild form of Mito, yet I'm having these problems and think tongue atrophy

possibly as well. Also, anyone have weakness of posterior neck muscles

(difficult keeping head up)?

Thanks,

Randall

[Guest guest]

,

Do you think you have any atrophy of the tongue or twitching? Does it just

fluctuate without ever getting very bad? Noticing some slurring most days and

think I can see clear signs of recent tongue atrophy, so still concerned this

might be something like ALS rather than Mito, though have had fluctuating speech

and swallowing problems before.

Thanks,

Randall

Re: Tongue weakness/atrophy, speech or swallowing problems?

Randall, I have had tongue weakness and swallowing difficulties at times.

sometime I feel my speech is slightly impaired when I really don't feel well.

Van Verst tbnkatie@...> wrote:

> > When I asked about tongue weakness and atrophy

> being associated with Mito

> > don't believe anyone wrote that they have either

> of these. Can I infer that

> > Mito rarely if ever causes problems like tongue

> atrophy, tongue weakness,

> > speech problems, e.g. slurring (often due to weak

> tongue and other muscles)

> > or swallowing problems?

My son does not have tongue atrophy (that I know of)

but has periodic problems with slurring. He also has

had increasing difficulty swallowing. He's going to be

18 in October and this has been a problem for the last

couple of years. The mito cocktail has made a huge difference.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

As far as the swallowing goes, every once in a while I have a problem where like

rice will get stuck in my throat. I have confirmed MELAS with mild symptoms. I

sometimes cannot think of the correct word to say and will say things like put

the dishes in the dryer when I mean the clothes. In fact saying things like

that alot of the time is one of the symptoms that the mito doc who diagnosed me

was looking for as well as those who are looking for neurological changes.

I know that a lady in CA who I correspond with had said she has a lot of trouble

swallowing as a symptom. She has not been tested for melas but her son has

confirmed melas and had a stroke last year.

My mother-in-law, who died last month had confirmed Parkinson's and was on meds

for it. She had had trouble swallowing since last November or so.

Janet Sample

Tongue weakness/atrophy, speech or swallowing problems?

When I asked about tongue weakness and atrophy being associated with Mito

don't believe anyone wrote that they have either of these. Can I infer that Mito

rarely if ever causes problems like tongue atrophy, tongue weakness, speech

problems, e.g. slurring (often due to weak tongue and other muscles) or

swallowing problems? I ask because latest neurologist thinks I have a mild form

of Mito, yet I'm having these problems and think tongue atrophy possibly as

well. Also, anyone have weakness of posterior neck muscles (difficult keeping

head up)?

Thanks,

Randall

[Guest guest]

Ruth this is alot like what I get at times. Also is something I drink is too

hat. I can get a temporary paralysis and not be able to swallow at all. I have

learned if it doesn't start to go down because it is too hat to spit it back out

in ahurry or I get burned! O

Ruth Ilean Fox rifox@...> wrote: This discussion regarding the

tongue is really making me wonder about

something I have experienced for a long time. There are periods where I

have a really hard time talking because I feel like I have a mouthful of

marbles. It comes and goes and the cocktail really decreased the sensation

a lot. I just assumed it came from my deafness (hear with a CI), but maybe

it might muscle issue???

I also have a problem where I get a terrible spasm when swallowing thin

liquids like water. I have to be careful not to drink them too fast as it

really hurts and it is like the liquid is stuck like a chicken bone. In a

couple of seconds my throat relaxes and I am fine again.

Ruth

_____

From: [mailto: ] On Behalf

Of Randall Bosin

Sent: Monday, June 05, 2006 9:50 PM

To:

Subject: Tongue weakness/atrophy, speech or swallowing problems?

When I asked about tongue weakness and atrophy being associated with Mito

don't believe anyone wrote that they have either of these. Can I infer that

Mito rarely if ever causes problems like tongue atrophy, tongue weakness,

speech problems, e.g. slurring (often due to weak tongue and other muscles)

or swallowing problems? I ask because latest neurologist thinks I have a

mild form of Mito, yet I'm having these problems and think tongue atrophy

possibly as well. Also, anyone have weakness of posterior neck muscles

(difficult keeping head up)?

Thanks,

Randall