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Re: Mc House

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Hey Bug,

I have stayed at the Mc House in NYC in the past on my own and

again with . The last time I called for a reservation, they said they

had changed their policy and only adults with children were allowed to stay.

It may be different in each location. I would call. It helps to have a

hospital social worker call the request in. Hope things are going well.

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We were told if you are with a ped or sometimes when they are very very

empty, but it isn't something you can schedule. That is what we were

told, but of course that was back in '97.

venomvw wrote:

>Can someone tell me if adult patients are allowed to stay there ?

>

>Thanks,

>bug

>

>

>

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends one is

automatically moderated or removed depending on the severity of the attack.

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" venomvw " pamcroy@...>

> Can someone tell me if adult patients are allowed to

> stay there ?

Each " House " sets it's own specific policies. Soem we

stay at only service families with children up to 19,

others to 21 and others allow adulsts if they have a

" congenitla disease process. I'd call the specific

house and ask their policy.

Joanne Kocourek (mom to , lies, and )

visit us at: http://www.caringbridge.org/il/annakris

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Hi Bug,

Most RMH go up to age 18 or 21, but the one in Cleveland actually goes

up to age 30 if you have a childhood disease. I first got sick at age

14 (I guess that's considered childhood) and my mom and I stayed there

when I was 25 for the first time.

Malisa

Mc House

Can someone tell me if adult patients are allowed to stay there ?

Thanks,

bug

Medical advice, information, opinions, data and statements contained

herein are

not necessarily those of the list moderators. The author of this e mail

is

entirely responsible for its content. List members are reminded of

their

responsibility to evaluate the content of the postings and consult with

their

physicians regarding changes in their own treatment.

Personal attacks are not permitted on the list and anyone who sends one

is

automatically moderated or removed depending on the severity of the

attack.

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Bug,

Carie Olsen is the woman you want to talk to, we just stayed there in June,

I just talked to her and

asked her for you. She said they do make exceptions for Dr. Shoffners

patients, as long as they have

a couple of rooms open and they are not turning any kids away. She said for

you to give her a call

and if she is not there leave a message, she will call you back, but talk

to her only, she will fill out the paperwork and have it ready, okay? By

the way, the phone number is 1-. Good luck, they were really

nice at the Mc house.

Lois (punkys-mom)

> [Original Message]

>

> To: >

> Date: 9/13/2005 3:14:53 PM

> Subject: Mc House

>

> Can someone tell me if adult patients are allowed to stay there ?

>

> Thanks,

> bug

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded

of their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one

is automatically moderated or removed depending on the severity of the

attack.

>

>

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You have given me so much info and help in the chats, this is at least

something I

could do for you, by the way, Carie is in charge over this one, so if she

approves it the others

can't argue, plus it's only $10 to stay there. Word of advice though, we

flew Angelflight,

so we didn't have our car, there are NO stores within walking distance, the

closest one is a couple of

miles, so if you are not going to have transportation there thats something

to consider. They do have

refrigerators, microwaves, everything like that, but while we were there (

Sun-Fri) there was only 2 meals

provided. There are places that deliver local though. Hope that helps.

There is transport to Shoffner from there

and to the hospitals, they can tell you how to do that. Good luck, Shoffner

was awesome, he looks like a hippi with

a haircut, you'll understand. When is your appt? We are scheduled on Nov. 9

for a followup for Leighann.

Lois

> [Original Message]

>

> To: >

> Date: 9/13/2005 8:35:54 PM

> Subject: Re: Mc House

>

> Lois that was so kind of you ! Thanks a lot. I'll call her tomorrow.

>

> bug

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded

of their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one

is automatically moderated or removed depending on the severity of the

attack.

>

>

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I was offered to stay there when I arranged my visit with Shoffner.

Perhaps the Atlanta house has a different rule? Horizon Molecular

Medicine also gave me information on Angel Flights.

Take care,

RH

> The only time adults are allowed to stay at the RMH is when they are

there with a child who is receiving care at local hospitals.

>

> Cindy

>

>

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FYI, we stayed at the Wyndham Hotel I think, maybe $70/night at the

time (a few years ago), and they said that there are so many hospitals

nearby (4 at least) that they regularly have patients staying there to

recuperate and cater to their needs (like to have food delivered). I

went to Northside, although I think I was originally scheduled at St.

ph's. My " office " appointment was at ish Rite, so my kids

had a field day in the child-friendly waiting room.

Take care,

RH

> > The only time adults are allowed to stay at the RMH is when they

are

> there with a child who is receiving care at local hospitals.

> >

> > Cindy

> >

> >

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Lois, I appreciate all the advice. I'm doing tube feeding so I'll

have to figure out how to get the stuff there. I might be able to

mail it ahead. The appt. is Oct 18 and the 19th is my biopsy. I've

met Dr. Shoffner twice before, so I get the hippi reference...lol !

bug

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Bug,

Good luck, thats right around the corner. Glad to help.

Lois

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded

of their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one

is automatically moderated or removed depending on the severity of the

attack.

>

>

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