Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 Dolores, I also have swelling of my feet that comes and goes in about 2 month cycles. Does not respond to elevation. When it started last year I thought it might be due to changing insulin types do to using the pump. Found out it wasn't. Anyway, I have wide tennis shoes I wear to work and by 10 am my feet are swollen and sore. My lower leg also swells. Lately I have been wearing my sandals. I have two pair that are pretty much closed sandal with lots of straps across them and one for my ankle as my feet turn inward. I also wear socks with them rather than nothing or pantyhose or something. I try to wear something that absorbs sweat. Anyway, when I wear the sandals my feet & legs do swell some but for some reason it seems not as bad. Janet Sample Re: appointments/drivers Dolores I'm glad the pillows helped. My swelling (when I have it) doesn't respond to elevation of my feet. Mine is due to dysautonomia. laurie > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 I have a couple of pair of sandles that I recently got that has velcro straps so I can let them out when I need to. I just have such a more difficult time walking (even with my can) when my feet are so swollen, plus they look so horrible all purplish and puffy? Thanks, Dolores To Laurie: I apolgize for asking but I need to check on that name also so I'll be ready for this new cardiologist this week. I know this sounds dumb but could you explain what dysautonia is? I don't find it in my quick reference guide I have. I hate to ask someone what somthing means, I usually just print off the page and try to go to some kind of reference guide that UMDF sent to me? I usually can come up with an answer on my own but I was wondering if I could get you to explain Sorry and thanks, Dolores Janet Sample thesamples@...> wrote: Dolores, I also have swelling of my feet that comes and goes in about 2 month cycles. Does not respond to elevation. When it started last year I thought it might be due to changing insulin types do to using the pump. Found out it wasn't. Anyway, I have wide tennis shoes I wear to work and by 10 am my feet are swollen and sore. My lower leg also swells. Lately I have been wearing my sandals. I have two pair that are pretty much closed sandal with lots of straps across them and one for my ankle as my feet turn inward. I also wear socks with them rather than nothing or pantyhose or something. I try to wear something that absorbs sweat. Anyway, when I wear the sandals my feet & legs do swell some but for some reason it seems not as bad. Janet Sample Re: appointments/drivers Dolores I'm glad the pillows helped. My swelling (when I have it) doesn't respond to elevation of my feet. Mine is due to dysautonomia. laurie > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2005 Report Share Posted July 10, 2005 Dolores, I need to work since my husbands business does not make much and we have a loan out against it. We have calculated how much a " job " would bring in and between the gas money and taxes we are just better off doing what we are doing. This way he can be home with my son. Anyway, cannot help you exactly with the dysautonia but the reason I wear some sort of socks is two fold--to stop the sweating onto the sandals and because I have very ugly feet. Janet Re: appointments/drivers Dolores I'm glad the pillows helped. My swelling (when I have it) doesn't respond to elevation of my feet. Mine is due to dysautonomia. laurie > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Dolores I guess I spelled dysautonomia wrong - sorry! My problems related to this come and go. I have several symptoms for periods of time and then they are gone for a period of time. laurie > Dolores, > > I need to work since my husbands business does not make much and we have a loan out against it. We have calculated how much a " job " would bring in and between the gas money and taxes we are just better off doing what we are doing. This way he can be home with my son. > > Anyway, cannot help you exactly with the dysautonia but the reason I wear some sort of socks is two fold--to stop the sweating onto the sandals and because I have very ugly feet. > > Janet > Re: appointments/drivers > > > Dolores > > I'm glad the pillows helped. My swelling (when I have it) doesn't > respond to elevation of my feet. Mine is due to dysautonomia. > > laurie > > > > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 I too have suffered with leg and feet swelling. My PCP and I discovered that when I am taking a Calcium Channel Blocker for my High BP, I tend to have more episodes that when I am taking other types of BP meds. I can't take Beta Blockers because they cause breathing problems, so I am currently taking Micardis. I am not sure exactly what type of med it is, but so far so good! Just thought I might mention this in case you may also be on BP meds. > > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2005 Report Share Posted July 11, 2005 Thanks for the info. I am on BP meds, but they don't seem to dictate the swelling. As long as I get enough rest and drink enough, I rearely have swelling. laurie > I too have suffered with leg and feet swelling. My PCP and I > discovered that when I am taking a Calcium Channel Blocker for my > High BP, I tend to have more episodes that when I am taking other > types of BP meds. I can't take Beta Blockers because they cause > breathing problems, so I am currently taking Micardis. I am not sure > exactly what type of med it is, but so far so good! > Just thought I might mention this in case you may also be on BP meds. > > > > > > > I do think that the slanted pillow things that Bill but under > my mattress to elevate the head did make a difference as I did sleep > pretty good last night but I stayed up late as I thought that might > help not to wake up. My feet were almost normal this am but I can > feeling them starting to swell now just fro being up on them. I > didn't think I could set thru Church and Sunday School both without > my feet swellng out of my shoes so just stayed home. I don't like > to do that but there comes a time, and I think the Lord will > understand. Thanks and God Bless, Dolores > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Sorry, I didn't get this answered soon but I was hispitalizws suddenly Sunday. More later Dolores Janet Sample thesamples@...> wrote:Dolores, I need to work since my husbands business does not make much and we have a loan out against it. We have calculated how much a " job " would bring in and between the gas money and taxes we are just better off doing what we are doing. This way he can be home with my son. Anyway, cannot help you exactly with the dysautonia but the reason I wear some sort of socks is two fold--to stop the sweating onto the sandals and because I have very ugly feet. Janet Re: appointments/drivers Dolores I'm glad the pillows helped. My swelling (when I have it) doesn't respond to elevation of my feet. Mine is due to dysautonomia. laurie > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 Dolores, How are you doing? Just read you were in the hospital. Janet Sample Re: appointments/drivers Dolores I'm glad the pillows helped. My swelling (when I have it) doesn't respond to elevation of my feet. Mine is due to dysautonomia. laurie > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 You can tell i was still feeling rough as I got an " F " in spelling. A person would need to speak a different language to figure out what I was talking about. From what I have been told a week ago last night I apparently had a mild stroke, then saturday I lost over two hours, two slices of boiled ham, four slices of bread and a pound of ground chuck. My neurologist gave it some kind of a name a mile-long and unable to repeat, he said the simple explanation is that I had a silent stroke. For some reason my dilantin level was low so I'm back on 300 mg daily instead of 200 one day and 300 the next. My blood pressure had been spiking for some reason, once when I went in for my B-12 shot my BP was 192/92 and the treatment insisted I be seen by my PCP. I knew from the Echo that I had two heart valves that were leaking so when they did a cardiac cathe the discovered that the valve they had ballooned in the late 1980's was now un-ballooned so they re-ballooned it and put in a stent, they also discovered that a main artery of some kind/name that feeds into my right leg had a partial blockage so they put a stent in it also. They did decided for sure that I had a mild heart attack by comparison of the EKG done March 31st prior to my surgery then and the EKG they did in the ER Sunday. Another problem was that my lungs were so full due to my COPD that they were surprised I hadn't gone into congestive heart failure. They took me off the Albuteral inhaler only for emergencies and I am to carry it in my purse just in case. I was using my Spirvia inhaler once capsule daily and my PCP had uped my Albuterol inhaler to two puffs four times a day and the pharmacist threw a fit as he said that was too many times daily. They started me on breathing treatments every four hours around the clock. A lady at Stormont (as it turned out I had worked with her at EDS before they lost the contract to Blue Cross) really worked to find a DME dealer in this area that would work with Gentiva (where Cigna goes thru for all their DME supplies to get me a Nebulizer. She finally found one in Lawrence, KS and the man delivered it to me at the hospital. That was teamwork and it is eally making a differnce. That's about it until I get my appt at KC at the MDA clinic as Dr. Welch said he was sending in a referral as he thought he had more than enough info for them now. He said he would also help arrange for transportaton and someone to stay with me. I just kept printing off all the ideas from all of you by e-mail and had my son bring them to me and he got to work on it. Thank the Lord I will know something (I hope). I know not to get my hopes up as I may continue as we think?, until they have to do an autopsy when I'm gone as I am 69 (ha), Seriously, I am keeping an open mind and perhaps they will find a definitive answer (one way or the other). I think it's time for me to say goodnight and just keep me in your prayers. Thanks, Dolores Janet Sample thesamples@...> wrote:Dolores, How are you doing? Just read you were in the hospital. Janet Sample Re: appointments/drivers Dolores I'm glad the pillows helped. My swelling (when I have it) doesn't respond to elevation of my feet. Mine is due to dysautonomia. laurie > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 I've lost groceries before, LOL! It's embarrassing to have your 8- year-old son ask you why there are groceries sitting out (seems I kept stepping over them, since I didn't remember going to the store). Hope you are well on the mend... Take care, RH > > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 I guess it's just something I am going to have to learn to live with, I just wish my 18 year old cat could really talk, she meows loudly in my ears when she wants something. I have been battleing a bought of pneumonia in my left lung and high temps, yesterday the only way I could get anywhere was by using my computer chair but I'm moving today and see doctor tomorrow for a recheck on the pneumonia. My only ?? is did you buy what you needed at the store? Thanks, Dolores ohgminion rakshasis@...> wrote:I've lost groceries before, LOL! It's embarrassing to have your 8- year-old son ask you why there are groceries sitting out (seems I kept stepping over them, since I didn't remember going to the store). Hope you are well on the mend... Take care, RH > > I do think that the slanted pillow things that Bill but under my mattress to elevate the head did make a difference as I did sleep pretty good last night but I stayed up late as I thought that might help not to wake up. My feet were almost normal this am but I can feeling them starting to swell now just fro being up on them. I didn't think I could set thru Church and Sunday School both without my feet swellng out of my shoes so just stayed home. I don't like to do that but there comes a time, and I think the Lord will understand. Thanks and God Bless, Dolores > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 Yes, but I sure had to cook the ground beef a long time to wish away the germs! What happens is that I try so hard to remember my grocery list (I usually forget to take a written one), I get distracted from everything else, and kind of am in a fog afterwards. I have managed so far not to forget when I'm supposed to be watching my kids, but I switch the names around sometimes, so that elicits laughs from people who don't know I'm ill (my husband has been very nice not to laugh at all my incidents he witnesses). I probably need a PDA, but would have to chain it to my belt loop so I wouldn't lose it. They have these two part child safety things that you can use on important items as well, it will beep when the first part (on your kid or other important item) gets more than a certain distance from the second part (on you). If I could attach one to the PDA, and remember to take the other part with me, I'd be set! Take care, RH > > > I do think that the slanted pillow things that Bill but > under my mattress to elevate the head did make a difference as I did > sleep pretty good last night but I stayed up late as I thought that > might help not to wake up. My feet were almost normal this am but I > can feeling them starting to swell now just fro being up on them. I > didn't think I could set thru Church and Sunday School both without > my feet swellng out of my shoes so just stayed home. I don't like > to do that but there comes a time, and I think the Lord will > understand. Thanks and God Bless, Dolores > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 I saw my PCP today and she said my lungs are clearing up and that I just about hvae the pneumonia under control. How I managed to get pneumonia, I'll never know? There is this six year old Native American boy named Thunder that is in foster care and he believes in his heart of hearts that I am his Grandmother. His Dad had worked with my son and his Dad had divorced his Mother due to he drug habit and the two of them were living with my son when Thunder's Dad made a couple of slips and died of Alcohol Poisoining. At any rate his -Father had brought him over to see me for a short while so he could see that " Grandma " was OK and his -Father said that I could have picked up the pneumonia in the hospital?? Take care and God Bless, Dolores ohgminion rakshasis@...> wrote:Yes, but I sure had to cook the ground beef a long time to wish away the germs! What happens is that I try so hard to remember my grocery list (I usually forget to take a written one), I get distracted from everything else, and kind of am in a fog afterwards. I have managed so far not to forget when I'm supposed to be watching my kids, but I switch the names around sometimes, so that elicits laughs from people who don't know I'm ill (my husband has been very nice not to laugh at all my incidents he witnesses). I probably need a PDA, but would have to chain it to my belt loop so I wouldn't lose it. They have these two part child safety things that you can use on important items as well, it will beep when the first part (on your kid or other important item) gets more than a certain distance from the second part (on you). If I could attach one to the PDA, and remember to take the other part with me, I'd be set! Take care, RH > > > I do think that the slanted pillow things that Bill but > under my mattress to elevate the head did make a difference as I did > sleep pretty good last night but I stayed up late as I thought that > might help not to wake up. My feet were almost normal this am but I > can feeling them starting to swell now just fro being up on them. I > didn't think I could set thru Church and Sunday School both without > my feet swellng out of my shoes so just stayed home. I don't like > to do that but there comes a time, and I think the Lord will > understand. Thanks and God Bless, Dolores > > > > > > Quote Link to comment Share on other sites More sharing options...
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