Re: please help with advice - Cathy

[Guest guest]

Hi Cathy,

My name is Pat and my g-son, , has RSS. We, too, went through a

period (before 's g-tube was placed) where he preferred solids to

formula. The Dr told us that this is because solids are heavier, and help

with reflux. Could this little boy be suffering from silent reflux? Has he

been tested for reflux, or delayed gastric emptying? Both of these, seem to

be common problems with RSS kids. The Drs here missed 's reflux for a

long time, and it eventually developed into an oral aversion. He is now 100%

g-tube fed, and takes very little by mouth, although we have been making

some baby steps with his eating lately.

At 8.5 months of age, weighed only 8#. Bottle feeding was almost

impossible at this point, and it was decided that a g-tube had to be placed.

In Sept 2002, he had the triple procedure (fundo, pyloroplasty, and g-tube

placement) done. At that time, he was on Similac with Iron, and polycose

mixed to 30kcal/oz. After his g-tube placement, he was moved to Elecare, an

elemental, pre-digested formula, mixed to 30kcal/oz. It was explained to us

that he was working too hard, burning too many calories, just trying to

digest his formula. With the EleCare all he has to do is absorb.

Hope this helps. And welcome to the group!

Pat (g-ma to , RSS, 25 months, 20# 5.6oz, 29.1 " , Prevacid, Singulair,

GT)