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Hi everyone,

I posted requesting doctor info a few days ago. Thanks for the

replies. I didn't have time to introduce myself though at that time.

I am 40 years old, married and the mother of three children. My

stepson is now 18 years old and not living at home anymore. My son

Craig, who has unspecified mito (we think) is 8 years old, and my son

Dalton, who may have mito but is mild and undiagnosed so far, is 6

years old. Craig had normal development until two years old then

started regressing. He is still walking and talking (thank God), but

with much difficulty many days. He is doing much better since being on

the mito cocktail. Dalton is on Levocarnitine, Co Q10 and other mito

supplements just like Craig, and it has helped his milder issues a lot

too.

I started having strange symptoms about a year ago. It started (like

Craig) with being unable to walk without falling over a couple of

times late at night (ataxia). I had some trouble with unusual fatigue

occassionally as well. In the past few months, I have been acquiring

new symtoms all the time- pins and needles, numbness, pain,

spasticity, muscle cramps and spasms, dizziness, etc.

I have a new symptom (maybe?) that I wonder if anyone else has. Or

maybe I need to get it checked out for another source of the problem?

I am having jaw pain and headaches all this week. The headaches are

expecially when I move a lot or bend over (it used to be just the

dizziness, but now it really hurts). I have had horrible allergies

all my life, but never sinus headaches. My sinuses don't seem full

enough to explain all this, and I don't feel like I have an infection

other than my teeth hurting.

I have had tingling in the roof of my mouth before, so I wonder if

this is just more neuropathic stuff?

Or am I just grinding my teeth at night without knowing it?

I hate running to more doctors than necessary if it's just more weird

mito stuff.

Thanks for your help.

Donna H.