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Re: SLE with sight loss

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Joanne,

ill be calling you...I work today but I will try either on the way to work

or later

love ya girl, hang in there, prayers are going your way

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I have not had a similar experience, but wanted to let you know that

you will be in my thoughts and prayers.

Hugs,

laurie

>

> Just spent the last 3 days in the hosp with a SLE. After 5 days of

> progressive vision loss and trouble seeing with vomiting and inabolity

> to walk, doc and neuro dx a SLE with parayisis with vision loss of the

> left eye and left side of muscles from the eyes down including

> swallowing and overall muscle imvolvement. My eye wi8ll remain patched

> for possibly up to 3 months to regain vision and repair the nerves and

> muscle strength. I am posting with very little vision. If there is

> someone else who has has a similar problem can you please post or email

> me.

>

> Thanks,

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

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>

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Joanne

You are in my thoughts and prayers.

Hugs,

laurie

>

> ,

> I am sorry to hear of your problems. I can relate. I have been down

> since Wednesday with an SLE myself. Not in the hospital though. I

> have been toughing it out at home. I don't have the vision loss with

> mine. I can't help you in that regard. My whole left side went numb

> and weak. Then I was in a coma like state for about 1 hour. I could

> hear, but could not respond or move. I can't swallow either when I am

> like that. The doctor did order the same old tests that keep coming

> back normal. Oh and a CT scan. I haven't had one since '99. I am

> sure it won't show anything. I am having the hardest time

> emotionally. I feel like everytime I pull myself up I get knocked

> back down again.

>

> Do you have a diagnosis? Take care. I hope you get feeling better

> soon.

> Joanne

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

>

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