Re: heading to New York in the future

[Guest guest]

I'm sorry that you still don't have any answers. You will be in my

thoughts and prayers.

laurie

> Well a strange turn of events has now come to pass. I saw my MDA doc in

> Michigan today and my biopsy came back normal from Cleveland Clinic, but he

> isn't ruling out Mito . I am now going to be going to Columbia Presbyterian

> in NYC some time in the future. What this means is I don't know any more

> than I did a year ago. He feels that with the Cardiomyopathy I have

> developed and the progression of other symptoms that I still have mito.

>

> Anyway that is the latest update I have for now. Please pray for my

> sanity as I am really confused.

>

> In Christ,

>

>

> 2 Corinthians 1:3-4

>

>

> ---------------------------------

> Yahoo! Shopping

> Find Great Deals on Gifts at Yahoo! Shopping

>

>

[Guest guest]

Hi ,

I am sorry to hear you still don't have anymore answers than you did a year

ago. I will keep you and your family in my thoughts and prayers.

Smiles,

Donna K

---- McCombs adacmccombs@...> wrote:

> Well a strange turn of events has now come to pass. I saw my MDA doc in

Michigan today and my biopsy came back normal from Cleveland Clinic, but he

isn't ruling out Mito . I am now going to be going to Columbia Presbyterian in

NYC some time in the future. What this means is I don't know any more than I

did a year ago. He feels that with the Cardiomyopathy I have developed and the

progression of other symptoms that I still have mito.

>

> Anyway that is the latest update I have for now. Please pray for my sanity

as I am really confused.

>

> In Christ,

>

>

> 2 Corinthians 1:3-4

>

>

> ---------------------------------

> Yahoo! Shopping

> Find Great Deals on Gifts at Yahoo! Shopping

>

>

[Guest guest]

,

I am sorry to hear that you did not get any answers from your

biopsy. Try to hang in there and stay strong....I know it is

hard!! It has been 10 years, 2 biopsies and numerous test for me

and I am still undiagnosed.

I will keep you in my thoughts and prayers!

God Bless,

>

> Well a strange turn of events has now come to pass. I saw my MDA

doc in Michigan today and my biopsy came back normal from Cleveland

Clinic, but he isn't ruling out Mito . I am now going to be going

to Columbia Presbyterian in NYC some time in the future. What this

means is I don't know any more than I did a year ago. He feels that

with the Cardiomyopathy I have developed and the progression of

other symptoms that I still have mito.

>

> Anyway that is the latest update I have for now. Please pray

for my sanity as I am really confused.

>

> In Christ,

>

>

> 2 Corinthians 1:3-4

>

>

> ---------------------------------

> Yahoo! Shopping

> Find Great Deals on Gifts at Yahoo! Shopping

>

>

[Guest guest]

Good luck at C-P in NYC, I did not have any luck there unfortunately

(NYC is relatively local for me - I eventually went down to Atlanta

for a fresh muscle biopsy). Don't know if there are any " mito

experts " who actually see patients in NYC, I went to a general neuro

(Daras) who was nice but didn't seem that knowledgeable about mito

(certainly not mito in adults). But at the time I wasn't 100% sure I

had mito...

Take care,

RH

> >

> > Well a strange turn of events has now come to pass. I saw my MDA

> doc in Michigan today and my biopsy came back normal from Cleveland

> Clinic, but he isn't ruling out Mito . I am now going to be going

> to Columbia Presbyterian in NYC some time in the future. What this

> means is I don't know any more than I did a year ago. He feels

that

> with the Cardiomyopathy I have developed and the progression of

> other symptoms that I still have mito.

> >

> > Anyway that is the latest update I have for now. Please pray

> for my sanity as I am really confused.

> >

> > In Christ,

> >

> >

> > 2 Corinthians 1:3-4

> >

> >

> > ---------------------------------

> > Yahoo! Shopping

> > Find Great Deals on Gifts at Yahoo! Shopping

> >

> >