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SLE with sight loss

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,

I am sorry to hear of your problems. I can relate. I have been down

since Wednesday with an SLE myself. Not in the hospital though. I

have been toughing it out at home. I don't have the vision loss with

mine. I can't help you in that regard. My whole left side went numb

and weak. Then I was in a coma like state for about 1 hour. I could

hear, but could not respond or move. I can't swallow either when I am

like that. The doctor did order the same old tests that keep coming

back normal. Oh and a CT scan. I haven't had one since '99. I am

sure it won't show anything. I am having the hardest time

emotionally. I feel like everytime I pull myself up I get knocked

back down again.

Do you have a diagnosis? Take care. I hope you get feeling better

soon.

Joanne

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