Re: To all who can respond

[Guest guest]

I am currently going through a crash like that myself after a bout with the

flu.....are you also in pain as not only do my muscles seize and become weak

but I also experience pain. Several of us here find this a commonality. To

give you an idea last weak I was to weak to lift the tea kettle and pour myself

a

cup of tea. It is passing off but the weakness seems to last longer than the

seizing. I take valium for the seizing (mild 5mg) and ketorolac for the

pain. Others will share with you what they experience and do as well I am sure.

My thoughts and prayers are with you (oh I am a fellow MELAS) Vivian

[Guest guest]

You might want to have your magnesium, calcium, potassium, sodium and

phosphorus checked. These can all affect your muscles - cramping,

weakness and pain.

I'm thinking of you,

laurie

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> I am not that old of a mito family group, I have been with you since

> Jan.06. This is a new problem for me, so I would like some opinions

> if possible. I have been going down hill with mito(Melas). It seems

> to come in stages, days are getting more and more difficult. I first

> had to learn to listen to my body, about the use of energy. I think

> I have dealt with the grief also of the loss my body has sustained.

> Just like you all suggested. Now, this started about a week ago. I

> have alot of problems with my arms, weakness has become worse and

> worse, then sometimes, it seems to attack my neck muscles, where I

> have trouble holding my head up sometimes. Well 3 days ago, I

> finally decided to go to hospital, hadn't been there in awhile, just

> been dealing with the mito problems. Well I felt something had

> really changed, cause I was having trouble with my upper torso's

> muscles. My back muscles, my front chest muscles, shoulder and neck

> muscles were going into total spasms, like charlie horses even if I

> moved the slighest. I was quite uncomfortable, since I couldn't

> really move, I even had to wear my neck brace to try and take some

> of the strain. Well, I got no where with the hospital, we all no how

> they look at you. I asked them to take a cpk, lactic acid, and blood

> count test. They did. My cpk they said was ok. My lactic acid was

> 2.80 and my blood count was up to 11. They told me to increase my

> baclofen and see a doc in a week. Whoop de doo. Left feeling just as

> lousy, and still having major problems with muscles. It's like all

> of a sudden they got drastically worse. Yest these muscles were

> weak, but never had back,chest muscle problems. It was more or less

> contained to arms. I feel like my shoulders are dislocating

> themselves some times, and it seems like I am wearing my neck brace

> more and more also. Can mito progress like that, or maybe I am

> crashing again? Don't no, any ideas?

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