Guest guest Posted March 25, 2005 Report Share Posted March 25, 2005 Hi there- I'm brand new to this group and I must say that it is an awesome source for us parents with children who have clubfeet...what a blessing to discover this. Anyways, my daughter Ella is 5 1/2 months old and was born with bilateral clubfeet. We did the casts for 7 weeks and she has been in the DBB for 3 months. Our general pediatrician noticed that the back of her head is becoming flattened especially on her right side. The technical name for this is " Plagiocephaly " and the doctor wants us to consider putting her in a helmet or headband to re-shape her head round. Because of the DBB and Casts, Ella has only slept on her back since day 1 and always favors her right side. During the day I try my hardest to keep her off her back to prevent pressure on the back of her head. I certainly don't want Ella to have to wear one of those helmets 23/7...I feel like she's already been through so much. Has anyone ever heard of this related to CF or have any recommendations. I figure it might be sort of common amongst kids with CF since they can't sleep on their tummies (at least it doesn't seem like they can sleep on their tummies??_ Thanks so much, Ella 10/9/04 bilateral CF DBB 237 Quote Link to comment Share on other sites More sharing options...
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