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flathead and clubfoot???

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Hi there-

I'm brand new to this group and I must say that it is an awesome

source for us parents with children who have clubfeet...what a

blessing to discover this.

Anyways, my daughter Ella is 5 1/2 months old and was born with

bilateral clubfeet. We did the casts for 7 weeks and she has been

in the DBB for 3 months. Our general pediatrician noticed that the

back of her head is becoming flattened especially on her right

side. The technical name for this is " Plagiocephaly " and the

doctor wants us to consider putting her in a helmet or headband to

re-shape her head round.

Because of the DBB and Casts, Ella has only slept on her back since

day 1 and always favors her right side. During the day I try my

hardest to keep her off her back to prevent pressure on the back of

her head.

I certainly don't want Ella to have to wear one of those helmets

23/7...I feel like she's already been through so much.

Has anyone ever heard of this related to CF or have any

recommendations. I figure it might be sort of common amongst kids

with CF since they can't sleep on their tummies (at least it doesn't

seem like they can sleep on their tummies??_

Thanks so much,

Ella 10/9/04 bilateral CF DBB 237

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