Re: Adults with seizures ?

[Guest guest]

Wow Delores, that's quite the adventure you've been on ! I'm sorry

things have been so bad for you. Neurology in general seems to be a

very poorly understood specialty. The brain is just too complex. I

hope they get it all figured out for you.

bug

[Guest guest]

Bug, I had a 30-minute seizure the day after my J-tube surgery, but

it was most likely set off by caloric deprivation, as they withdrew

my TPN immediately and I couldn't tolerate much through the J-tube

for quite a while due to pain. I figure I was getting about 600

calories per 24 hours. Not enough! Follow-up EEGs have been read as

normal. I know there are other adults in this group who do have

seizures.

Hope you can sort out what's going on.

Barbara

> Are there any Mito adults out that have been dx'ed with a seizure

> disorder ? I recently had a standard EEG and a sleep-deprived

EEG,

> both of which were abnormal. The doc hasn't called back to give

me

> her official interpretation, but the copy of the results states :

>

> " Several moderate amplitute isolated left temporal sharp waves

were

> seen. This increases the risk of focal seizures arising from this

> region. There was very frequent intermittent left temporal

> slowing. Temporal intermittent rythmic delta activity (TIRDA) was

> also seen. Some studies have shown ann increased risk of seizures

> associated with TIRDA " .

>

> All I can say is that I'm glad I was persistent about the resident

> ordering the follow up sleep-deprived test. He told me my first

EEG

> was fine, despite the fact that the Neuro lab stated the results

wre

> abnormal and recommended they order the sleep-deprived study. Why

> does life have to be so darn difficult sometimes ? That resident

is

> an idiot and unfortunately, I've had to see him a few times. He

> seems to be bouncing around between the neuromuscular clinic and

the

> general neuro clinic....maybe he should get a job in the custodial

> dept cleaning toilets...although, he might not be qualified ! My

> neuromuscular doc agreed with me that the test should be

> done...thank God.

>

> bug

[Guest guest]

Thanks Laurie.

[Guest guest]

I had a few grand mal seizures (possibly due to Carnitor), but now

have only " absence seizures " (sort of loss of consciousness without

falling down). My EEG shows " slow waves " which indicate sleep-like

patterns while awake. But I haven't been told I have epilepsy,

just " absence seizures " or " seizure-like episodes " . From what I've

heard, some stroke-like episodes are pretty close to seizure-like

episodes, so without an EEG or MRI at the time, it's anyones guess.

But I've never had a sleep-deprived EEG, just regular and 48-hour

video EEG's, the latter which showed slow waves, absence seizure

episodes without abnormal EEG activity, and episodes of slow heart

rate (under 50 bpm at one point).

Take care,

RH

> Are there any Mito adults out that have been dx'ed with a seizure

> disorder ? I recently had a standard EEG and a sleep-deprived EEG,

> both of which were abnormal. The doc hasn't called back to give me

> her official interpretation, but the copy of the results states :

>

> " Several moderate amplitute isolated left temporal sharp waves were

> seen. This increases the risk of focal seizures arising from this

> region. There was very frequent intermittent left temporal

> slowing. Temporal intermittent rythmic delta activity (TIRDA) was

> also seen. Some studies have shown ann increased risk of seizures

> associated with TIRDA " .

>

> All I can say is that I'm glad I was persistent about the resident

> ordering the follow up sleep-deprived test. He told me my first

EEG

> was fine, despite the fact that the Neuro lab stated the results

wre

> abnormal and recommended they order the sleep-deprived study. Why

> does life have to be so darn difficult sometimes ? That resident

is

> an idiot and unfortunately, I've had to see him a few times. He

> seems to be bouncing around between the neuromuscular clinic and

the

> general neuro clinic....maybe he should get a job in the custodial

> dept cleaning toilets...although, he might not be qualified ! My

> neuromuscular doc agreed with me that the test should be

> done...thank God.

>

> bug

[Guest guest]

My seizures that I considered " grand mal " were teeth clenching, fall

on the floor seizures. I and my husband have older (in their 40's

now) cousins who have " epilepsy " (or whatever the name is now), so

the " old " terminology sticks with me. But I know there are several

types of seizures that go beyond the original petit mal or grand mal

categories...

The doctors I go to say things like " we need to see if your seizures

are from epilepsy or not " which I guess means if they are due to

misfirings in my brain or metabolic reasons.

The only real seizure specialists I've seen were at Columbia-

Presbyterian. Both there and during a neuropsych eval I had medical

professional witness the seizures, and both said " absence seizures " .

I understand there may be a few more types?

Take care,

RH

> > > Are there any Mito adults out that have been dx'ed with a

seizure

> > > disorder ? I recently had a standard EEG and a sleep-deprived

EEG,

> > > both of which were abnormal. The doc hasn't called back to

give me

> > > her official interpretation, but the copy of the results

states :

> > >

> > > " Several moderate amplitute isolated left temporal sharp waves

were

> > > seen. This increases the risk of focal seizures arising from

this

> > > region. There was very frequent intermittent left temporal

> > > slowing. Temporal intermittent rythmic delta activity (TIRDA)

was

> > > also seen. Some studies have shown ann increased risk of

seizures

> > > associated with TIRDA " .

> > >

> > > All I can say is that I'm glad I was persistent about the

resident

> > > ordering the follow up sleep-deprived test. He told me my first

> > EEG

> > > was fine, despite the fact that the Neuro lab stated the results

> > wre

> > > abnormal and recommended they order the sleep-deprived study.

Why

> > > does life have to be so darn difficult sometimes ? That

resident

> > is

> > > an idiot and unfortunately, I've had to see him a few times. He

> > > seems to be bouncing around between the neuromuscular clinic and

> > the

> > > general neuro clinic....maybe he should get a job in the

custodial

> > > dept cleaning toilets...although, he might not be qualified !

My

> > > neuromuscular doc agreed with me that the test should be

> > > done...thank God.

> > >

> > > bug

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and statements

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> >

> > Personal attacks are not permitted on the list and anyone who

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> >

> >

[Guest guest]

Interesting RH, thanks for the info.

bug

[Guest guest]

I think any normal person would have seizures with so few calories !

You wonder how the thought that was good for you.

bug

[Guest guest]

Sounds scary to say the least. At least for the observer.

bug

[Guest guest]

Janet, I appreciate you sharing your story. I never considered MELAS

for some reason. Makes sense. Sorry to hear about your family. Hope

you have better success with your health.

bug