Mathieu's Endo Appointment

[Guest guest]

Hey all,

Mathieu has improved since last week; which was such a blessing for me. I have

had a break so I can get back on track with school and life.

My husband and I drove to Keelser AFB Hospital (Biloxi Miss), for our second

visit. This time it was with Endo. Dr. was very thorough with him,

going over every inch of his body with a fine tooth comb. He ordered over three

vials of blood to be tested for GH and other sorts. He ordered an x-ray of

Mathieu's hand and wrist, ansd said we may need to come back to do half of his

body depending on what this x-ray shows. As I expected to hear, he does not

want to anything until Mathieu reaches 3 yrs old. He was concerned about

Mathieu's complete drop off the chart from the 50% at birth, but he said it may

or may nor bw related to hormones. He also said normally children with severed

GH problems are already SGA or IUGR, which Mathieu was neither.

Due to Mathieu's weight problem he is putting in a referral to see the GI

specialist when we go back up in a few weeks to reveiw results. I had also

expected that. For some reason the docs have always stated " get more calories

in him. " It is not possible the child already eats over 1000 a day!!!! He

should be growing with that much consumed. He is allergic to dairy otherwise he

would be getting Pedisure, and he hates formula. He poops, and sometimes has

bouts of diarrhea without a reasonable cause. He expressed alot of concern

about Mathieu's weight and said his slow height may be a direct correlation of a

GI problem. They already ruled out CF, but he said there are other deficiencies

they will be looking for this time. He is concerned with Mathieus GERD (silent

reflux) hx having something to do with his deficient growth...funny when I went

to GI at Chidren's they never seemed concerned. 8 months later with a different

doc; it an issue.

Whomever my child belongs; to Dr. did state no matter what , at the rate

he is growing now and if he at least doesn't get to the 10% line on his own, he

will deifnitely be a candidate for GH treatment.

So, I still have no answers, but at least he is in good hands. On a lighter

note, if there any active duty out there, seriously consider giving to the

Fisher house next time you do your CFC donations in October. It is a house that

offers room and board for families in need of medical care on bases; very

similiar to the Mcdonald homes.. We stayed in one on base in Biloxi.

What a great place.

I will keep you all posted.

Jay

[Guest guest]

Jay - I am glad you have an endo now that seems on top of things.

From reading this report, I would just give you a couple " cents " .

First of all, children who are born at normal growth percentiles

like your son (and 50th!) and fall off later are different from

IUGR/SGA/RSS kids. Once any major diagnosis is ruled out (like the

CF), one reason can be growth hormone deficiency -- and the only way

to determine this is with a stim test. However, the vast majority

of GHD kids are usually not failure to thrive (weight) kids as well,

usually having normal weight. But not always, so it should be

checked out.

Second of all, failure to thrive can have a SIGNIFICANT impact on

height, virtually stopping the height growth. If you chart the two,

length and weight, you usually will see a drop off in weight

starting first, and then about 2-3 months after, the height starts

top drop off as well. Visa versa, when the caloric intake is

increased and weight becomes to " catch up " (climb the percentiles),

height catch-up also begins 2-3 months after.

1,000 calories a day may simply not be enough for your son. I

looked in our records, and my daughter was taking in more than 1,200

calories a day at 2 years of age to gain weight (at 1,000 a day she

stayed flat at 18 pounds for 6 months, until she was diagnosed with

RSS and they said get calories into her no matter what, despite the

fact that 1,000 calories for an 18lb kid was already 135% of what

she needed!!!).

MAGIC has been getting a lot of " failure to thrive " calls lately --

and we may have to try and get a document together, or a parent

volunteer to handle the calls -- I may post something here for help

in writing something. Kids who are born normal, and then have GI

issues of some variation (always similar to what our kids go

through) and their growth fails.

> Hey all,

>

> Mathieu has improved since last week; which was such a blessing

for me. I have had a break so I can get back on track with school

and life.

>

> My husband and I drove to Keelser AFB Hospital (Biloxi Miss), for

our second visit. This time it was with Endo. Dr. was very

thorough with him, going over every inch of his body with a fine

tooth comb. He ordered over three vials of blood to be tested for

GH and other sorts. He ordered an x-ray of Mathieu's hand and

wrist, ansd said we may need to come back to do half of his body

depending on what this x-ray shows. As I expected to hear, he does

not want to anything until Mathieu reaches 3 yrs old. He was

concerned about Mathieu's complete drop off the chart from the 50%

at birth, but he said it may or may nor bw related to hormones. He

also said normally children with severed GH problems are already SGA

or IUGR, which Mathieu was neither.

>

> Due to Mathieu's weight problem he is putting in a referral to see

the GI specialist when we go back up in a few weeks to reveiw

results. I had also expected that. For some reason the docs have

always stated " get more calories in him. " It is not possible the

child already eats over 1000 a day!!!! He should be growing with

that much consumed. He is allergic to dairy otherwise he would be

getting Pedisure, and he hates formula. He poops, and sometimes has

bouts of diarrhea without a reasonable cause. He expressed alot of

concern about Mathieu's weight and said his slow height may be a

direct correlation of a GI problem. They already ruled out CF, but

he said there are other deficiencies they will be looking for this

time. He is concerned with Mathieus GERD (silent reflux) hx having

something to do with his deficient growth...funny when I went to GI

at Chidren's they never seemed concerned. 8 months later with a

different doc; it an issue.

>

> Whomever my child belongs; to Dr. did state no matter

what , at the rate he is growing now and if he at least doesn't get

to the 10% line on his own, he will deifnitely be a candidate for

GH treatment.

>

> So, I still have no answers, but at least he is in good hands. On

a lighter note, if there any active duty out there, seriously

consider giving to the Fisher house next time you do your CFC

donations in October. It is a house that offers room and board for

families in need of medical care on bases; very similiar to the

Mcdonald homes.. We stayed in one on base in Biloxi. What a

great place.

>

> I will keep you all posted.

>

> Jay

>

>

>