Re: questions about UPD7 mat

[Guest guest]

Hi,. I remember you so well from the convention two years ago.

In fact, last summer many people were asking about you and .

We had not heard from you, so we could not tell them anything. Now

that you are back, we can all catch up!

Before I can answer your questions about 's lack of weight

gain, I need to know some things. What formula are you using? What

is the rate/hour or, if you are doing bolus feeds, how much and how

often? Does eat anything by mouth? Does he have reflux

and/or vomiting episodes? Have you tried Periactin?

Please email me with this info and I hope I can help. You can either

post a message here or email me privately at magicrss @hotmail.com.

As for the autism part, I don't know about the UPD 7 connection, but

I do know that our RSS kids have a greater chance of developing

this. Usually, however, it is more of a lesser form - PDD (pervasive

developmental delay/disorder). I do recall Dr. H. being concerned

about this for because of some signs she saw and because of

his extremely low weight. (I also remember talking to you and

consoling you after she told you this among other things. Remember

sitting at the table near her spot and just trying to absorb all of

the info she gave you?)

I hope to hear from you soon. I will help you as best I can.

Jodi Z.

mom to Max, if you remember him - my redhead who is now 15.5 years

old!