Re: Need help describing a feeling

[Guest guest]

,

This is very much like my daughter used to have when she was younger.

She has been told she has dysautonomia. YMMV

Van Verst wrote:

>Hi,

>

>My son, is 17. He sometimes gets a feeling he

>describes as feeling like he's outside his body. When

>he has these feelings he also complains of feeling

>dizzy, being tingly (has periphral neuropathy),

>falling, being tired and he's got nausea and vomiting.

>I think that the problem is autonomic in nature.

>Anybody else ever have this feeling? Do you have other

>words to describe it?

>

>Thanks.

>

>

>

>Mom to the two best kids in the world!

>http://www.caringbridge.org/visit/thomasandkatie

>

>__________________________________________________

>

[Guest guest]

--- dgregori dgregori@...> wrote:

> ,

>

> This is very much like my daughter used to have when

> she was younger.

> She has been told she has dysautonomia. YMMV

>

He has dysautonomia. He's been tachy this week too.

Hate this! The problem is that when you describe this

feeling to docs they tend to think it's a psych problem.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

Yes, my PCP and also ER people thought it was " psych " (anxiety) for

me, but the cardiologist used a 30-day monitor to show there were

tachy and bradycardia episodes, thus a medical condition.

A cardiologist is best I think for these type symptoms - they are the

only ones to rule out " anxiety " as the sole cause of " these

symptoms " . A psychologist will just assume you *do* have anxiety and

treat you as such, regardless (IMHO...).

I currently am on a PPO plan, which has higher deductibles than a

HMO, but I can see *any* specialist I want without a referral (VERY

nice!).

Take care,

RH

>

> > ,

> >

> > This is very much like my daughter used to have when

> > she was younger.

> > She has been told she has dysautonomia. YMMV

> >

>

> He has dysautonomia. He's been tachy this week too.

> Hate this! The problem is that when you describe this

> feeling to docs they tend to think it's a psych problem.

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

> __________________________________________________

>

[Guest guest]

--- ohgminion rakshasis@...> wrote:

> A cardiologist is best I think for these type

> symptoms - they are the

> only ones to rule out " anxiety " as the sole cause of

> " these

> symptoms " . A psychologist will just assume you *do*

> have anxiety and

> treat you as such, regardless (IMHO...).

He does have psych issues but they don't cause

tachycardia, bladder spasms, GI bleeds, etc. It's just

too easy to blame the patient.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

,

I get this kind of feeling every once in a while but cannot describe it. Mine

happens when my blood sugar goes very low or just yesterday when I drank 1/2 of

a bottle of wine cooler. I think mine has more to do with low blood sugar

though but I also get the tingly feelings, nausea, dizzy all at once also.

I can recognize mine now as it starts and usually grab something with sugar in

it and go sit or lay down.

Janet Sample

Need help describing a feeling

Hi,

My son, is 17. He sometimes gets a feeling he

describes as feeling like he's outside his body. When

he has these feelings he also complains of feeling

dizzy, being tingly (has periphral neuropathy),

falling, being tired and he's got nausea and vomiting.

I think that the problem is autonomic in nature.

Anybody else ever have this feeling? Do you have other

words to describe it?

Thanks.

Mom to the two best kids in the world!

http://www.caringbridge.org/visit/thomasandkatie

__________________________________________________

[Guest guest]

---Yes I get this feeling! It is usually caused from my POTS...when

I have low blood volume. It is hard to describe and feels awful. I

think of it as feeling like you do when you are in shock.

I used to think it was from low blood sugar...but my blood suger was

fine. I feel like I have not eaten or drinken anyting, naustious,

spacey, light tinglly on the verge of collape. IT almost feels as if

part of my insides are missing. I just need to sleep and push fluids

when i feel like this.

Have you looked at the website DINET Dysautonomia Information

Network. It may be very helpful.

Dawn Anich

In , " Janet Sample "

wrote:

>

> ,

>

> I get this kind of feeling every once in a while but cannot

describe it. Mine happens when my blood sugar goes very low or just

yesterday when I drank 1/2 of a bottle of wine cooler. I think mine

has more to do with low blood sugar though but I also get the tingly

feelings, nausea, dizzy all at once also.

>

> I can recognize mine now as it starts and usually grab something

with sugar in it and go sit or lay down.

>

> Janet Sample

> Need help describing a feeling

>

>

>

> Hi,

>

> My son, is 17. He sometimes gets a feeling he

> describes as feeling like he's outside his body. When

> he has these feelings he also complains of feeling

> dizzy, being tingly (has periphral neuropathy),

> falling, being tired and he's got nausea and vomiting.

> I think that the problem is autonomic in nature.

> Anybody else ever have this feeling? Do you have other

> words to describe it?

>

> Thanks.

>

>

>

> Mom to the two best kids in the world!

> http://www.caringbridge.org/visit/thomasandkatie

>

> __________________________________________________

>