Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Hi Ann-Marie--Sorry to read about your PICC infection. In general, I cannot use any muscle relaxants as cause a marked increase in my muscle weakness. There are a few other people here who have a similar reaction to muscle relaxants, but also quite a few who use them successfully. I'm guessing that when your infection clears up, your muscles will recover. Meanwhile, I hope you can find something that helps. If you have gotten help from Flexeril in the past, that would seem safer to me, even with the sedation. I'm always reluctant to try new drugs when I'm in a crash. But that's just me. Robaxin may be fine for you. Hugs, Barbara > Due to the infection my muscles are killing me and i can hardly walk > up my steps. They are heavy with cramps, spasms, and pain. Even the > arches in my feet are cramping up.I had an appointment with my Pain > Management Doctor yesterday and I ended up seeing his Assistant. She > prescribed me a muscle relaxer called " Robaxin " Generic name > " Methocarbamol " . > > All of my Mito symptoms and the symptoms I had from the infection all > fit into the Side Effects paragraph, the Precaution and some of the > medication I am on even shows up in the Drug Interactions paragraph. > > Has anyone been on this medication for muscle spasms, or muscle > cramps? I am hesitant to use this medication. I guess what really > pisses me off the most is that this new Assistant doesn't know me or > anything about my Mitochondrial disease. > > I was going to go back on the Flexeril but she said this medication > is less drowsy. I know I have to call my Doctor but I was just > wondering if anyone has used this medication and if so did it help > you or not? Thanks > > Hugs, > Ann-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 AnnMarie- I would TRUST your instincts. I read up on the med and it seems iffy if you are on some of meds listed as in the heavy sedation category. Perhaps you want to speak with your pharmacist about it. Our lives with mito are too precious to leave in the care of someone who #1 doesn't know us, #2 doesn't know how our mito reacts. Be wary of this. Feel free to email me offlist. HUGS Ann > > > Hi, > > I was taken to the ER last Wednesday evening by ambulance and then > admitted. It started out with a migraine and progressed into > vomiting, chills, rigors, muscle pain, cramps, and spasms, urination > ceased and a fever of 104.0 ,etc... > > It was a line infection, and we knew this before I left by ambulance, > b/c my Docs had me hook back up to my TPN to see if it was a PICC > line infection or an infection with my J tube. Of course I knew it > was my PICC line, but I had to hook up anyway. > > I am finally home from the hospital and found out that my PICC Line > was growing a gram negative bug. Awaiting the rest of the cultures. > > Due to the infection my muscles are killing me and i can hardly walk > up my steps. They are heavy with cramps, spasms, and pain. Even the > arches in my feet are cramping up.I had an appointment with my Pain > Management Doctor yesterday and I ended up seeing his Assistant. She > prescribed me a muscle relaxer called " Robaxin " Generic name > " Methocarbamol " . > > All of my Mito symptoms and the symptoms I had from the infection all > fit into the Side Effects paragraph, the Precaution and some of the > medication I am on even shows up in the Drug Interactions paragraph. > > Has anyone been on this medication for muscle spasms, or muscle > cramps? I am hesitant to use this medication. I guess what really > pisses me off the most is that this new Assistant doesn't know me or > anything about my Mitochondrial disease. > > I was going to go back on the Flexeril but she said this medication > is less drowsy. I know I have to call my Doctor but I was just > wondering if anyone has used this medication and if so did it help > you or not? Thanks > > Hugs, > Ann-Marie > > > > > -- > No virus found in this outgoing message. > Checked by AVG Anti-Virus. > Version: 7.0.344 / Virus Database: 267.11.14/131 - Release Date: 10/12/2005 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Ann-Marie, Sorry to hear about the infection. I don't have any experience with the muscle relaxant you were given, but sometimes when I have cramps during the day and can't get drowsy I take 1/2 of my Flexeril pill and that helps some with both issues. Don't try it without the doc's OK though. Ann-Marie Mc wrote: >Hi, > >I was taken to the ER last Wednesday evening by ambulance and then >admitted. It started out with a migraine and progressed into >vomiting, chills, rigors, muscle pain, cramps, and spasms, urination >ceased and a fever of 104.0 ,etc... > >It was a line infection, and we knew this before I left by ambulance, >b/c my Docs had me hook back up to my TPN to see if it was a PICC >line infection or an infection with my J tube. Of course I knew it >was my PICC line, but I had to hook up anyway. > >I am finally home from the hospital and found out that my PICC Line >was growing a gram negative bug. Awaiting the rest of the cultures. > >Due to the infection my muscles are killing me and i can hardly walk >up my steps. They are heavy with cramps, spasms, and pain. Even the >arches in my feet are cramping up.I had an appointment with my Pain >Management Doctor yesterday and I ended up seeing his Assistant. She >prescribed me a muscle relaxer called " Robaxin " Generic name > " Methocarbamol " . > >All of my Mito symptoms and the symptoms I had from the infection all >fit into the Side Effects paragraph, the Precaution and some of the >medication I am on even shows up in the Drug Interactions paragraph. > >Has anyone been on this medication for muscle spasms, or muscle >cramps? I am hesitant to use this medication. I guess what really >pisses me off the most is that this new Assistant doesn't know me or >anything about my Mitochondrial disease. > >I was going to go back on the Flexeril but she said this medication >is less drowsy. I know I have to call my Doctor but I was just >wondering if anyone has used this medication and if so did it help >you or not? Thanks > >Hugs, >Ann-Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 Ann-Marie, Sorry to hear about the infection. I don't have any experience with the muscle relaxant you were given, but sometimes when I have cramps during the day and can't get drowsy I take 1/2 of my Flexeril pill and that helps some with both issues. Don't try it without the doc's OK though. Ann-Marie Mc wrote: >Hi, > >I was taken to the ER last Wednesday evening by ambulance and then >admitted. It started out with a migraine and progressed into >vomiting, chills, rigors, muscle pain, cramps, and spasms, urination >ceased and a fever of 104.0 ,etc... > >It was a line infection, and we knew this before I left by ambulance, >b/c my Docs had me hook back up to my TPN to see if it was a PICC >line infection or an infection with my J tube. Of course I knew it >was my PICC line, but I had to hook up anyway. > >I am finally home from the hospital and found out that my PICC Line >was growing a gram negative bug. Awaiting the rest of the cultures. > >Due to the infection my muscles are killing me and i can hardly walk >up my steps. They are heavy with cramps, spasms, and pain. Even the >arches in my feet are cramping up.I had an appointment with my Pain >Management Doctor yesterday and I ended up seeing his Assistant. She >prescribed me a muscle relaxer called " Robaxin " Generic name > " Methocarbamol " . > >All of my Mito symptoms and the symptoms I had from the infection all >fit into the Side Effects paragraph, the Precaution and some of the >medication I am on even shows up in the Drug Interactions paragraph. > >Has anyone been on this medication for muscle spasms, or muscle >cramps? I am hesitant to use this medication. I guess what really >pisses me off the most is that this new Assistant doesn't know me or >anything about my Mitochondrial disease. > >I was going to go back on the Flexeril but she said this medication >is less drowsy. I know I have to call my Doctor but I was just >wondering if anyone has used this medication and if so did it help >you or not? Thanks > >Hugs, >Ann-Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 , Thank you for the suggestion of taking a half of a dose of Flexeril when I can't afford to be drowsy. Since I have been on Flexeril in the past, I was sure it wouldn't be a problem with my doc and I was right. He said go ahead and try it. Hugs, Ann-Marie At 05:04 PM 10/12/2005, you wrote: >Ann-Marie, > >Sorry to hear about the infection. I don't have any experience with the >muscle relaxant you were given, but sometimes when I have cramps during >the day and can't get drowsy I take 1/2 of my Flexeril pill and that >helps some with both issues. Don't try it without the doc's OK though. > > > >Ann-Marie Mc wrote: > > >Hi, -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.12.0/132 - Release Date: 10/13/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 Hi Barbara, I still have a few more days of antibiotics left to take for the line infection. I was on the IV form of antibiotic while I was in the hospital,but since i have no access line right now I had to go on the oral stuff. My IV's while in the hospital were infiltrating every day and they had to keep pulling out the old IV and putting new ones in. I am sure that you are right that once my body clears away this infection that my muscles will start to feel much better. My body really took a beating with this infection. And Dr. Korson wants me to have another PICC line placed once my blood cultures come back negative. I am not looking forward to this at all. :-( I also didn't want to try a new drug while still fighting this infection and my body being at an all time low. I wouldn't know if it was the new med or the infection getting worse. I have decided to not try the Robaxin and to stay with the Flexeril instead. My doctor agrees with that as well. Thanks!! Hugs, Ann-Marie At 03:46 PM 10/12/2005, you wrote: >Hi Ann-Marie--Sorry to read about your PICC infection. In general, I cannot >use any muscle relaxants as cause a marked increase in my muscle weakness. >There are a few other people here who have a similar reaction to muscle >relaxants, but also quite a few who use them successfully. I'm guessing that >when your infection clears up, your muscles will recover. Meanwhile, I hope >you can find something that helps. If you have gotten help from Flexeril in >the past, that would seem safer to me, even with the sedation. I'm always >reluctant to try new drugs when I'm in a crash. But that's just me. Robaxin >may be fine for you. > >Hugs, >Barbara > > > Due to the infection -- No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.344 / Virus Database: 267.12.0/132 - Release Date: 10/13/2005 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2005 Report Share Posted October 14, 2005 I hope it helps. Ann-Marie Mc wrote: >, > >Thank you for the suggestion of taking a half of a dose of Flexeril >when I can't afford to be drowsy. Since I have been on Flexeril in >the past, I was sure it wouldn't be a problem with my doc and I was >right. He said go ahead and try it. > >Hugs, >Ann-Marie > > > > > > Quote Link to comment Share on other sites More sharing options...
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