Re: pulmonary function---question

[Guest guest]

Barbara-

I've not experienced the sensation of needing to cough when I lye down.

I too would wonder if the fluid, as minimal as it may be, is the cause for

your persistent urge to cough when lying down. I would bring it up again and

see if you can push for an answer.

[Guest guest]

Thanks , I wondered if you had this.

Barbara

> Re: pulmonary function---question

>

> Barbara-

>

> I've not experienced the sensation of needing to cough when I lye

down.

> I too would wonder if the fluid, as minimal as it may be, is the cause

for

> your persistent urge to cough when lying down. I would bring it up again

and

> see if you can push for an answer.

>

>

>

>

>

[Guest guest]

Laurie, You're right, I've had elevated carbon dioxide at times, detected

via blood work, but the last time it was checked, it was normal, so my new

neuro did not feel the need to do anything. I did have a sleep study a year

ago and they concluded that I did not need C-pap or Bi pap at that time. My

pulmonary function tests were at least 15 years ago, maybe more. They told

me they'd had 80-year-olds who had done better.....Gee. That made me feel

just great.

There have been periods of time during the last 15 years when I've had to

sleep propped up on a stack of pillows to avoid coughing, and I've reported

this to my docs-at-the-time. They just say hmmm and never do anything. I

guess it's time to approach my current PCP with this issue and see how he

responds.

Thanks for your input. Always appreciated.

Barbara

> Re: pulmonary function---question

>

> Barbara

>

> I know what you mean about adding another doctor to the list, but it

> sounds like you need to see a pulmonologist, especially if the last

> one was abnormal. One of the really big concerns is if you are

> retaining carbon dioxide

>

> I think you are C-PAP or something similar. Have you tried putting it

> on while sitting up and not lay down for several minutes. Has the

> pressure needs been evaluated in the last year? My presssure had to be

> increased by 6 cm in just one year. My neuro recommends a yearly

> pressure eval. for those with neuromuscular diseases. Many people with

> breathing issues need to sleep with their head elevated.

>

> laurie

>

>

> > I have a question for those of you who go through pulmonary function

> > testing

> > regularly and have breathing issues of one sort or another. Do you ever

> > have

> > an immediate urge to cough when you lie down? Can this be related to

> > respiratory muscle weakness or is it something else? I did have

pulmonary

> > function testing years ago and the results were not good, but no one

> > suggested any follow up and I have not wanted to add one more doctor to

the

> > list. I've has sob for many years in varying degrees and weakness in

> > respiratory muscles. A recent CT scan did find a small amount of fluid

> > around the heart, but no one seemed concerned about that and I question

> > whether such a small amount could induce coughing when lying down.

> >

> > Barbara

> >

> >

> >

> >

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