Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 First of all, I'd like to wish everyone a Happy New Year. I may be cheating in my reply, but it is easier for me to address multiple people in 1 posting, so I hope this doesn't offend anyone! Congratulations EMILY on your new addition. I too, will be joining you very soon in becoming a mom of 3 (although I think you have your hands fuller than me with young twins & a newborn!) DANIELLE, my 10 year-old son used to have very significant issue with sensory integration dysfunction, so muh so that he would either vomit at the sight of things that bothered him or turning blue & needing oxygen. You indicated that Coby has always had small sensory issues that you didn't think were necessary to address. The issues of touching grass, sand, rice, etc. may be indicators of sensory integration dysfunction & should be addressed either by an OT or you can do some activities with Coby yourself to help him with this. There are other things that may indicate a more serious sensory problem such as inability to eat or touch certain textures of food, not liking to wear certain clothing fabrics or any clothes at all, not liking to be hugged or cuddled, not liking to get dirty, unable to adjust to hot or cold temperatures, not getting dizzy when most people would, & the list goes on... As much as any of these activitites may make him scream, repetition & time does break kids of sensory disorders. If Coby has difficulty with any of the things I mentioned above, you can do some of the following activities with him: brushing his body with a soft bristle brush (like the ones they use in hospitals to scrub before entering the operating room), lots of spinning and swinging activities on the playground, encouraging him to walk barefoot in sand and grass, playing with messy things such as finger painting, shaving cream, play-doh, dirt, glue, etc., having him help you in cooking activities in which he has to touch messy or sticky ingredients such as peanut butter, melted marshmallow (as in rice krispy treats), cookie dough, and playing with rice and dry beans. After years of therapy with my son, his sensory issues are minimal if any now. My son had years of OT to alleviate this problem among others. He has never had an issue with bathing that I can recall, but he still freaks out a little in the shower when the water is coming down over his head. SONIA, you asked about your son reaching certain milestones, being a RSS child. My experience was that all gross motor milestones were pretty delayed. I am not sure if this is true for all RSS babies, but when my son was a baby, his head appeared much bigger than the rest of his body. This made it hard for him to be able to sit up & support the weight of his head until he " grew into it " . He also had weak muscle tone. He had & still has dimples in his shoulder blades. I am not sure if this has to do with muscle tone, strength, etc. but I think it also may have been a factor in upper body strength. I like to equate my son's milestones not with his age, but with his size. He sat up, rolled over, walked, etc. when he was the height/weight of typical children that reach those milestones. For example, he was 28 months when he walked, and at that age he was the size of a typical 9-12 month old (the age when most kids walk). Try not to get too stressed about any developmental delays may encounter. If you are doing therapy with him, you are doing all you can & he will eventually catch up to his peers. MARY, I loved your post about being a parent to a RSS child. What a great outlook & sense of humor you have! I am not sure who originally addressed the nighttime bed wetting. Fortunately I didn't encounter this problem with either of my children, although (RSS) potty- trained a bit later than the norm. However, I just thought I'd share that I was at the park last week with a friend of mine & she has an 8 year-old & a six-year-old boy who both still wear pull-ups at night. Her oldest son, who is 9, doesn't have this problem. Her children are normal & I consider her to be a super mom! Just goes to show you that there are lots of other parents out there dealing with the same issue, RSS or not. Maybe this isn't just a RSS thing???? Last, but not least, JODIE, my son has ADHD & has taken medication for this off & on since he was 7-years-old. This is hard to diagnose in a young child & usually becomes more of an issue when a child is in grade school. Most of the medications used to treat ADHD are stimulants (controlled substances), although there is one that has been on the market for about a year or so that is not a stimulant (Strattera). You can probably find a website somewhere using a search engine that has a parent questionnaire you can fill out to see if your child is likely to have ADHD, but even is you think he does, the chances of getting him on medication at such a young age would be slim. I apologize again for my long post, but I hope my replies were helpful... Kim (mom to , 10, RSS, , 3, and baby-to-be in February) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Kim. your theory on the dimples in the shoulders is interesting. I remeber when Immi was a baby and the docs were looking for a diagnosis (actually they had a good idea that she was RSS right from the start but didn't feel that I should be let in on this secret until she was officially diadnosed by a geneticist at Great Ormand Street....we couldn't get an appointment til she was 9 months......but hey...I'm only her mother!!)Anyway...the docs were very interested in the dimples in her shoulders but never offered any info into why they might be there! I also agree with you about the milestones.....they just have to wait until they are big and strong enough thats all. Imogen is very small so she didn't walk til she was 3....when she was 3 she was the size of a 12-15 month old....the average age for 'normal' kids to walk. The only sensory problem Imogen has is a dislike of loud noise(fireworks,cinema ads,groups of children shouting excitedly) we have to brief her thoroughly before we go anywhere 'loud' or she freaks. Is this just an Immism?? Happy New Year Eileen Kacey171 capuano_k@...> wrote: First of all, I'd like to wish everyone a Happy New Year. I may be cheating in my reply, but it is easier for me to address multiple people in 1 posting, so I hope this doesn't offend anyone! Congratulations EMILY on your new addition. I too, will be joining you very soon in becoming a mom of 3 (although I think you have your hands fuller than me with young twins & a newborn!) DANIELLE, my 10 year-old son used to have very significant issue with sensory integration dysfunction, so muh so that he would either vomit at the sight of things that bothered him or turning blue & needing oxygen. You indicated that Coby has always had small sensory issues that you didn't think were necessary to address. The issues of touching grass, sand, rice, etc. may be indicators of sensory integration dysfunction & should be addressed either by an OT or you can do some activities with Coby yourself to help him with this. There are other things that may indicate a more serious sensory problem such as inability to eat or touch certain textures of food, not liking to wear certain clothing fabrics or any clothes at all, not liking to be hugged or cuddled, not liking to get dirty, unable to adjust to hot or cold temperatures, not getting dizzy when most people would, & the list goes on... As much as any of these activitites may make him scream, repetition & time does break kids of sensory disorders. If Coby has difficulty with any of the things I mentioned above, you can do some of the following activities with him: brushing his body with a soft bristle brush (like the ones they use in hospitals to scrub before entering the operating room), lots of spinning and swinging activities on the playground, encouraging him to walk barefoot in sand and grass, playing with messy things such as finger painting, shaving cream, play-doh, dirt, glue, etc., having him help you in cooking activities in which he has to touch messy or sticky ingredients such as peanut butter, melted marshmallow (as in rice krispy treats), cookie dough, and playing with rice and dry beans. After years of therapy with my son, his sensory issues are minimal if any now. My son had years of OT to alleviate this problem among others. He has never had an issue with bathing that I can recall, but he still freaks out a little in the shower when the water is coming down over his head. SONIA, you asked about your son reaching certain milestones, being a RSS child. My experience was that all gross motor milestones were pretty delayed. I am not sure if this is true for all RSS babies, but when my son was a baby, his head appeared much bigger than the rest of his body. This made it hard for him to be able to sit up & support the weight of his head until he " grew into it " . He also had weak muscle tone. He had & still has dimples in his shoulder blades. I am not sure if this has to do with muscle tone, strength, etc. but I think it also may have been a factor in upper body strength. I like to equate my son's milestones not with his age, but with his size. He sat up, rolled over, walked, etc. when he was the height/weight of typical children that reach those milestones. For example, he was 28 months when he walked, and at that age he was the size of a typical 9-12 month old (the age when most kids walk). Try not to get too stressed about any developmental delays may encounter. If you are doing therapy with him, you are doing all you can & he will eventually catch up to his peers. MARY, I loved your post about being a parent to a RSS child. What a great outlook & sense of humor you have! I am not sure who originally addressed the nighttime bed wetting. Fortunately I didn't encounter this problem with either of my children, although (RSS) potty- trained a bit later than the norm. However, I just thought I'd share that I was at the park last week with a friend of mine & she has an 8 year-old & a six-year-old boy who both still wear pull-ups at night. Her oldest son, who is 9, doesn't have this problem. Her children are normal & I consider her to be a super mom! Just goes to show you that there are lots of other parents out there dealing with the same issue, RSS or not. Maybe this isn't just a RSS thing???? Last, but not least, JODIE, my son has ADHD & has taken medication for this off & on since he was 7-years-old. This is hard to diagnose in a young child & usually becomes more of an issue when a child is in grade school. Most of the medications used to treat ADHD are stimulants (controlled substances), although there is one that has been on the market for about a year or so that is not a stimulant (Strattera). You can probably find a website somewhere using a search engine that has a parent questionnaire you can fill out to see if your child is likely to have ADHD, but even is you think he does, the chances of getting him on medication at such a young age would be slim. I apologize again for my long post, but I hope my replies were helpful... Kim (mom to , 10, RSS, , 3, and baby-to-be in February) --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 hi kim! thanks for the reply on the ADDH. i would rather not medicate him anyway unless it becomes a real problem with his schooling later on. but i'll look up that web site. i have an iep meeting this week with our elementry school. we are going to put him in their preschool program 3x a week and other 2 days he is already in a program but he needs the structure and routine of everyday i believe and so does his ped. dr and the child study team coordinator. hopefully this will help him. it is 2 1/2 hrs a day. thanks again. jodie (nicholas-5 nonrss, christopher-3 rss 22lbs 33 " , johnathon-6 m nonrss) ps- congrates ahead of time on baby #3, and from one busy mom of three to another to be-make sure to some how have a 10 min break to your self!! --- In RSS-Support , " Kacey171 " wrote: > First of all, I'd like to wish everyone a Happy New Year. I may be cheating in my reply, > but it is easier for me to address multiple people in 1 posting, so I hope this doesn't > offend anyone! > > Congratulations EMILY on your new addition. I too, will be joining you very soon in > becoming a mom of 3 (although I think you have your hands fuller than me with > young twins & a newborn!) > > DANIELLE, my 10 year-old son used to have very significant issue with sensory > integration dysfunction, so muh so that he would either vomit at the sight of things > that bothered him or turning blue & needing oxygen. You indicated that Coby has > always had small sensory issues that you didn't think were necessary to address. The > issues of touching grass, sand, rice, etc. may be indicators of sensory integration > dysfunction & should be addressed either by an OT or you can do some activities with > Coby yourself to help him with this. There are other things that may indicate a more > serious sensory problem such as inability to eat or touch certain textures of food, not > liking to wear certain clothing fabrics or any clothes at all, not liking to be hugged or > cuddled, not liking to get dirty, unable to adjust to hot or cold temperatures, not > getting dizzy when most people would, & the list goes on... As much as any of these > activitites may make him scream, repetition & time does break kids of sensory > disorders. If Coby has difficulty with any of the things I mentioned above, you can do > some of the following activities with him: brushing his body with a soft bristle brush > (like the ones they use in hospitals to scrub before entering the operating room), lots > of spinning and swinging activities on the playground, encouraging him to walk > barefoot in sand and grass, playing with messy things such as finger painting, > shaving cream, play-doh, dirt, glue, etc., having him help you in cooking activities in > which he has to touch messy or sticky ingredients such as peanut butter, melted > marshmallow (as in rice krispy treats), cookie dough, and playing with rice and dry > beans. After years of therapy with my son, his sensory issues are minimal if any now. > My son had years of OT to alleviate this problem among others. He has never had an > issue with bathing that I can recall, but he still freaks out a little in the shower when > the water is coming down over his head. > > SONIA, you asked about your son reaching certain milestones, being a RSS child. My > experience was that all gross motor milestones were pretty delayed. I am not sure if > this is true for all RSS babies, but when my son was a baby, his head appeared much > bigger than the rest of his body. This made it hard for him to be able to sit up & > support the weight of his head until he " grew into it " . He also had weak muscle tone. > He had & still has dimples in his shoulder blades. I am not sure if this has to do with > muscle tone, strength, etc. but I think it also may have been a factor in upper body > strength. I like to equate my son's milestones not with his age, but with his size. He > sat up, rolled over, walked, etc. when he was the height/weight of typical children > that reach those milestones. For example, he was 28 months when he walked, and at > that age he was the size of a typical 9-12 month old (the age when most kids walk). > Try not to get too stressed about any developmental delays may encounter. If > you are doing therapy with him, you are doing all you can & he will eventually catch > up to his peers. > > MARY, I loved your post about being a parent to a RSS child. What a great outlook & > sense of humor you have! > > I am not sure who originally addressed the nighttime bed wetting. Fortunately I didn't > encounter this problem with either of my children, although (RSS) potty- > trained a bit later than the norm. However, I just thought I'd share that I was at the > park last week with a friend of mine & she has an 8 year-old & a six-year-old boy > who both still wear pull-ups at night. Her oldest son, who is 9, doesn't have this > problem. Her children are normal & I consider her to be a super mom! Just goes to > show you that there are lots of other parents out there dealing with the same issue, > RSS or not. Maybe this isn't just a RSS thing???? > > Last, but not least, JODIE, my son has ADHD & has taken medication for this off & on > since he was 7-years-old. This is hard to diagnose in a young child & usually > becomes more of an issue when a child is in grade school. Most of the medications > used to treat ADHD are stimulants (controlled substances), although there is one that > has been on the market for about a year or so that is not a stimulant (Strattera). You > can probably find a website somewhere using a search engine that has a parent > questionnaire you can fill out to see if your child is likely to have ADHD, but even is > you think he does, the chances of getting him on medication at such a young age > would be slim. > > I apologize again for my long post, but I hope my replies were helpful... > > Kim (mom to , 10, RSS, , 3, and baby-to-be in February) Quote Link to comment Share on other sites More sharing options...
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