Re: surgery after tenotomy - update

[Guest guest]

Dayle, from your doctor's explanation, it sounds like your son

has 'atypical clubfoot'. There are a few others here whose children

have also been diagnosed with the same. Angel (Kai's mom) has put

together a website with some additional info. The site address is:

http://adifferentfoot.freeservers.com/index.html

Hope this helps,

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

>

> We went in for our first apt after the tenotomy.

>

> Dr. Morin said the surgery was a success. BUT... he says we'll be

> doing a few more casts and manipulations. I did question him about

> hte method he was using. He acknowledged that its not the

> traditional ponseti route (and he has been for the training as

> recently as last summer.. or fall?). He said the difference here

is

> that my son's condition is due to a genetic syndrome. The foot is

> characteristically different than most - it is thicker, wider and

> shorter in lengeth. He said at the last training he went to, these

> type of feet were discussed separately and that Dr. Ponseti had

come

> across some such cases and recommends a more aggressive approach

and

> that the tenotomy can be done before all manipulation is complete

in

> order to allow for more correction.

>

> I don't know about you, but I do feel more comfortable with this

new

> information.

>

> Thanks for everyone's help and continued advice.

>

> Dayle

>

> *still odn't have the hang of the sigs..

>

>

>

>

> > > >I'm in Montreal and my son is being treated at St. JUstine's

by

> > Drs

> > > >Grimard and Morin. Just wondering if anyone has any

experience

> > with

> > > >them. They are using the Ponseti method.

> > > >

> > > >The tenotomy was last week and based on the ultasound of the

> foot,

> > > >Dr. Grimard suggested he may need a further operation to place

> the

> > > >bones in the foot. That need would be re-evaluated in a few

> > months,

> > > >as the improved flexibility might allow them to move into

proper

> > > >position.

> > > >

> > > >Based on their initial assessment, has a very severe

> case

> > of

> > > >clubbed feet, as did his father. I guess I'm just getting

> nervous

> > > >based on some comments someone made. Just looking for some

> > comments.

> > > >

> > > >TIA

> > > >

> > > >Dayle

> > > >- (12/04) <-- not ANOTHER surgery?!?!

> > > >

> > > >http://dayle.kravec.com

> >

[Guest guest]

Hi Dayle-

I'm glad your doctor gave you an explanation. I would ask him if

your son has " atypical clubfoot " , if so this explanation does make

sense. If not I would still get a second opinion or at least notify

Dr. P.

>

> We went in for our first apt after the tenotomy.

>

> Dr. Morin said the surgery was a success. BUT... he says we'll be

> doing a few more casts and manipulations. I did question him

about

> hte method he was using. He acknowledged that its not the

> traditional ponseti route (and he has been for the training as

> recently as last summer.. or fall?). He said the difference here

is

> that my son's condition is due to a genetic syndrome. The foot is

> characteristically different than most - it is thicker, wider and

> shorter in lengeth. He said at the last training he went to, these

> type of feet were discussed separately and that Dr. Ponseti had

come

> across some such cases and recommends a more aggressive approach

and

> that the tenotomy can be done before all manipulation is complete

in

> order to allow for more correction.

>

> I don't know about you, but I do feel more comfortable with this

new

> information.

>

> Thanks for everyone's help and continued advice.

>

> Dayle

>

> *still odn't have the hang of the sigs..

>

>

>

>

> > > >I'm in Montreal and my son is being treated at St. JUstine's

by

> > Drs

> > > >Grimard and Morin. Just wondering if anyone has any

experience

> > with

> > > >them. They are using the Ponseti method.

> > > >

> > > >The tenotomy was last week and based on the ultasound of the

> foot,

> > > >Dr. Grimard suggested he may need a further operation to

place

> the

> > > >bones in the foot. That need would be re-evaluated in a few

> > months,

> > > >as the improved flexibility might allow them to move into

proper

> > > >position.

> > > >

> > > >Based on their initial assessment, has a very severe

> case

> > of

> > > >clubbed feet, as did his father. I guess I'm just getting

> nervous

> > > >based on some comments someone made. Just looking for some

> > comments.

> > > >

> > > >TIA

> > > >

> > > >Dayle

> > > >- (12/04) <-- not ANOTHER surgery?!?!

> > > >

> > > >http://dayle.kravec.com

> >