Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 Hi , Oh thanks for this list. So true and funny I enjoyed every bit of it. Although it may not be fair, my son Jordan is known by almost everyone in his preschool. They all think he's the cutest. He gets special attention all the time and the teachers look out for him. When my son came home from school on Halloween he had a big bag full of candy (not that he eats any of it but Mom helped a bit). The aide on the bus said the other kids didn't have half what he had. Even in the apartment building where I live they all know Jordan. Maybe it's due to his personality also. Jordan is very talkative and at times can say things that make you wonder is this a child or an adult. Take care Mom to Jordan 3 years 1 month 26lbs 12oz 34in G-tube, periactin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 That is simply remarkable! You are a fantastic writer, and obviously an amazing Mom! Thanks! Beth H. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 ...that was so beautiful!! And so true!!! How precious our little bundles are to us despite all the trials and tribulations that come with them.... You've made my day! Best wishes to all of you... Eileen (Imogen RSS age 6 and teeny weeny, Lucy 13 massive and with attitude, twins Owen and Natasha 9 middle sized and usually fighting...) Kearns maknjess@...> wrote: Howdy Folks! In an attempt to put perspective in my life, I decided to come up with a Top 10 List as to why I LOVE BEING A PARENT TO A CHILD WITH SGA/RSS? Perhaps, after you all read my reasons, you'll add a few of your own. This list is is the spirit of the Dave Letterman show who always has a list for something. However, rather than be cynical, I thought I'd be ironic. I hope this brings a chuckle, may be even a few groans from parents who have been there and done that and designed the T-shirt. The point is, even though we do face challenges and emotional roller coasters, happiness, I have found is a choice - especially in the midst of caring for a child with special needs. Drum roll Please.....!!!!!!! 1. The clothing bill for Connor is non-existent. Since he is 15 months old but wearing only 3-6 mo clothes, I'm still opening things we got from the shower. 2. Emeril, the chef on the cooking channel can't hold a candle to me when it comes to (affect a snooty chef accent here) food texture! When your child can't even swallow vanilla pudding without gagging, I have learned to puree, saute, and pulverize all food down to it's sub atomic level so that my darling Connor can swallow it. 3. My vocabulary has increased dramatically. I now can pronounce and spell dysphagia, hyper-ciphosis, cryptorchidism, polymorphic markers on Chromosome 7 and finally my all time favorite, psedohydrocephalus. Please don't ask me to pronounce these things when I'm drunk.... 4. I appreciate more that excellent things always come in small packages. Connor is our joy. All 14 pounds of him. 5. Name any baby food, any variety or brand and I can tell you the nutrional and caloric content from memory! I am now learning the caloric contents to Mac n cheese, wendy's french fries, and pumpkin pudding bread which Connor gobbles us in short order. (No pun intended) 6. Since just about everybody is staring at Connor now, he has become a great conversational opener. Whether we are waiting at the car wash or at the public library, I ALWAYS end up in some educational conversation on Russel-Silver Syndrome and dwarfism. Free public education and exhaustive networking accomplished for the Magic Foundation - how cool! 7. Thanks to Connor's syndrome, I can now perform higher math functions when I calculate the calories, centimeters or BMI of Connor. I also have become more tech savy since I've needed to get a new computer and load or download info from Magic! 8. Connor has a set of cheerleaders at the Pediatricians office. We are no longer just a chart number. Due to frequent weigh in's, all the nurses know every precious inch of Connor and his latest weight stat too! 9. I love the movie, " Finding Nemo. " A little fish with asymetry who could do anything he put his mind to despite his paranoid father. Although I identify to much with the Dad, I have so much hope for Connor thanks to that movie. 10. Finally, the number one reason I love being a parent to a child with SGA/RSS is HE BRINGS OUT THE PERFECTION IN EVERYONE HE COMES INTO CONTACT WITH. This is not symnpathy or pity. It's perfection. When other children drop down to their knees so they can be on Connor's level, that's perfection. When the nurses cry with you on a bad weigh in day, that's perfection. When you can finally, finally, get rid of the premie clothing and your neighborhood celebrates with you, that's perfection. When you go to church and find your son has been passed back nine pews because people just got to hold and love him, that's perfection. When your seven year old says, " I know, I know, I know, one mommy- three kids, I'll feed Connor his bottle; " that's perfection. When you hold your precious child and know that his love is unconditional for you and yet somehow, it completes you as a human being, that is the sweetest perfection of all. Grace and Peace to all, Kearns mother to Graham 7; Cameron 4; Connor 15 mo's - IUGR,SGA, Periactin and Zantac. --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 How wonderful! Thanks for sharing that. Your humour is superb. I think Ken has a rival on this group for writing the funnies! What a beautiful thing to read. Debby Top 10 > Howdy Folks! > > In an attempt to put perspective in my life, I decided to come up > with a Top 10 List as to why I LOVE BEING A PARENT TO A CHILD WITH > SGA/RSS? Perhaps, after you all read my reasons, you'll add a few of > your own. This list is is the spirit of the Dave Letterman show who > always has a list for something. However, rather than be cynical, I > thought I'd be ironic. I hope this brings a chuckle, may be even a > few groans from parents who have been there and done that and > designed the T-shirt. The point is, even though we do face > challenges and emotional roller coasters, happiness, I have found is > a choice - especially in the midst of caring for a child with special > needs. > > Drum roll Please.....!!!!!!! > > 1. The clothing bill for Connor is non-existent. Since he is 15 > months old but wearing only 3-6 mo clothes, I'm still opening things > we got from the shower. > > 2. Emeril, the chef on the cooking channel can't hold a candle to me > when it comes to (affect a snooty chef accent here) food texture! > When your child can't even swallow vanilla pudding without gagging, I > have learned to puree, saute, and pulverize all food down to it's sub > atomic level so that my darling Connor can swallow it. > > 3. My vocabulary has increased dramatically. I now can pronounce > and spell dysphagia, hyper-ciphosis, cryptorchidism, polymorphic > markers on Chromosome 7 and finally my all time favorite, > psedohydrocephalus. Please don't ask me to pronounce these things > when I'm drunk.... > > 4. I appreciate more that excellent things always come in small > packages. Connor is our joy. All 14 pounds of him. > > 5. Name any baby food, any variety or brand and I can tell you the > nutrional and caloric content from memory! I am now learning the > caloric contents to Mac n cheese, wendy's french fries, and pumpkin > pudding bread which Connor gobbles us in short order. (No pun > intended) > > 6. Since just about everybody is staring at Connor now, he has > become a great conversational opener. Whether we are waiting at the > car wash or at the public library, I ALWAYS end up in some > educational conversation on Russel-Silver Syndrome and dwarfism. > Free public education and exhaustive networking accomplished for the > Magic Foundation - how cool! > > 7. Thanks to Connor's syndrome, I can now perform higher math > functions when I calculate the calories, centimeters or BMI of > Connor. I also have become more tech savy since I've needed to get a > new computer and load or download info from Magic! > > 8. Connor has a set of cheerleaders at the Pediatricians office. We > are no longer just a chart number. Due to frequent weigh in's, all > the nurses know every precious inch of Connor and his latest weight > stat too! > > 9. I love the movie, " Finding Nemo. " A little fish with asymetry who > could do anything he put his mind to despite his paranoid father. > Although I identify to much with the Dad, I have so much hope for > Connor thanks to that movie. > > 10. Finally, the number one reason I love being a parent to a child > with SGA/RSS is HE BRINGS OUT THE PERFECTION IN EVERYONE HE COMES > INTO CONTACT WITH. This is not symnpathy or pity. It's perfection. > When other children drop down to their knees so they can be on > Connor's level, that's perfection. When the nurses cry with you on a > bad weigh in day, that's perfection. When you can finally, finally, > get rid of the premie clothing and your neighborhood celebrates with > you, that's perfection. When you go to church and find your son has > been passed back nine pews because people just got to hold and love > him, that's perfection. When your seven year old says, " I know, I > know, I know, one mommy- three kids, I'll feed Connor his bottle; " > that's perfection. When you hold your precious child and know that > his love is unconditional for you and yet somehow, it completes you > as a human being, that is the sweetest perfection of all. > > Grace and Peace to all, > > Kearns > mother to Graham 7; Cameron 4; Connor 15 mo's - IUGR,SGA, Periactin > and Zantac. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 , Would you mind if I send this to Salem for the MAGIC newsletter? What a wonderful perspective you have! What a chuckle I got reading it tonight. Thank you for the giggles. Jodi Z. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 , You, are Connor's gift. God bless. Donna, Mother to Dayna, Grandma to Alyssa 24mos. Top 10 > Howdy Folks! > > In an attempt to put perspective in my life, I decided to come up > with a Top 10 List as to why I LOVE BEING A PARENT TO A CHILD WITH > SGA/RSS? Perhaps, after you all read my reasons, you'll add a few of > your own. This list is is the spirit of the Dave Letterman show who > always has a list for something. However, rather than be cynical, I > thought I'd be ironic. I hope this brings a chuckle, may be even a > few groans from parents who have been there and done that and > designed the T-shirt. The point is, even though we do face > challenges and emotional roller coasters, happiness, I have found is > a choice - especially in the midst of caring for a child with special > needs. > > Drum roll Please.....!!!!!!! > > 1. The clothing bill for Connor is non-existent. Since he is 15 > months old but wearing only 3-6 mo clothes, I'm still opening things > we got from the shower. > > 2. Emeril, the chef on the cooking channel can't hold a candle to me > when it comes to (affect a snooty chef accent here) food texture! > When your child can't even swallow vanilla pudding without gagging, I > have learned to puree, saute, and pulverize all food down to it's sub > atomic level so that my darling Connor can swallow it. > > 3. My vocabulary has increased dramatically. I now can pronounce > and spell dysphagia, hyper-ciphosis, cryptorchidism, polymorphic > markers on Chromosome 7 and finally my all time favorite, > psedohydrocephalus. Please don't ask me to pronounce these things > when I'm drunk.... > > 4. I appreciate more that excellent things always come in small > packages. Connor is our joy. All 14 pounds of him. > > 5. Name any baby food, any variety or brand and I can tell you the > nutrional and caloric content from memory! I am now learning the > caloric contents to Mac n cheese, wendy's french fries, and pumpkin > pudding bread which Connor gobbles us in short order. (No pun > intended) > > 6. Since just about everybody is staring at Connor now, he has > become a great conversational opener. Whether we are waiting at the > car wash or at the public library, I ALWAYS end up in some > educational conversation on Russel-Silver Syndrome and dwarfism. > Free public education and exhaustive networking accomplished for the > Magic Foundation - how cool! > > 7. Thanks to Connor's syndrome, I can now perform higher math > functions when I calculate the calories, centimeters or BMI of > Connor. I also have become more tech savy since I've needed to get a > new computer and load or download info from Magic! > > 8. Connor has a set of cheerleaders at the Pediatricians office. We > are no longer just a chart number. Due to frequent weigh in's, all > the nurses know every precious inch of Connor and his latest weight > stat too! > > 9. I love the movie, " Finding Nemo. " A little fish with asymetry who > could do anything he put his mind to despite his paranoid father. > Although I identify to much with the Dad, I have so much hope for > Connor thanks to that movie. > > 10. Finally, the number one reason I love being a parent to a child > with SGA/RSS is HE BRINGS OUT THE PERFECTION IN EVERYONE HE COMES > INTO CONTACT WITH. This is not symnpathy or pity. It's perfection. > When other children drop down to their knees so they can be on > Connor's level, that's perfection. When the nurses cry with you on a > bad weigh in day, that's perfection. When you can finally, finally, > get rid of the premie clothing and your neighborhood celebrates with > you, that's perfection. When you go to church and find your son has > been passed back nine pews because people just got to hold and love > him, that's perfection. When your seven year old says, " I know, I > know, I know, one mommy- three kids, I'll feed Connor his bottle; " > that's perfection. When you hold your precious child and know that > his love is unconditional for you and yet somehow, it completes you > as a human being, that is the sweetest perfection of all. > > Grace and Peace to all, > > Kearns > mother to Graham 7; Cameron 4; Connor 15 mo's - IUGR,SGA, Periactin > and Zantac. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 , I forgot to tell you that Finding Nemo is my favorite movie, too. In fact, while we were in Disney, I collected all the Finding Nemo pins I could find. I intend to wear the Nemo pin alone at the convention. (I love Dorie, too, because of her learning disabilities and how she overcomes those to help Marlin.) I think I have 20 pins now. I had to get some from a trader because Disney does not have much out for that movie yet. Strange...it was a big hit with kids. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 I'm going to have to stop reading these at work. This one made me cry. Although I have never met any of the people on this list serve in person, this is the strongest, most concerned, loving, tolerant, wonderful parents that ever existed. I wouldn't recognize anyone of you gals if I passed you on the street, except that you would be the ones with the biggest hearts. Regards, Comrie Top 10 Howdy Folks! In an attempt to put perspective in my life, I decided to come up with a Top 10 List as to why I LOVE BEING A PARENT TO A CHILD WITH SGA/RSS? Perhaps, after you all read my reasons, you'll add a few of your own. This list is is the spirit of the Dave Letterman show who always has a list for something. However, rather than be cynical, I thought I'd be ironic. I hope this brings a chuckle, may be even a few groans from parents who have been there and done that and designed the T-shirt. The point is, even though we do face challenges and emotional roller coasters, happiness, I have found is a choice - especially in the midst of caring for a child with special needs. Drum roll Please.....!!!!!!! 1. The clothing bill for Connor is non-existent. Since he is 15 months old but wearing only 3-6 mo clothes, I'm still opening things we got from the shower. 2. Emeril, the chef on the cooking channel can't hold a candle to me when it comes to (affect a snooty chef accent here) food texture! When your child can't even swallow vanilla pudding without gagging, I have learned to puree, saute, and pulverize all food down to it's sub atomic level so that my darling Connor can swallow it. 3. My vocabulary has increased dramatically. I now can pronounce and spell dysphagia, hyper-ciphosis, cryptorchidism, polymorphic markers on Chromosome 7 and finally my all time favorite, psedohydrocephalus. Please don't ask me to pronounce these things when I'm drunk.... 4. I appreciate more that excellent things always come in small packages. Connor is our joy. All 14 pounds of him. 5. Name any baby food, any variety or brand and I can tell you the nutrional and caloric content from memory! I am now learning the caloric contents to Mac n cheese, wendy's french fries, and pumpkin pudding bread which Connor gobbles us in short order. (No pun intended) 6. Since just about everybody is staring at Connor now, he has become a great conversational opener. Whether we are waiting at the car wash or at the public library, I ALWAYS end up in some educational conversation on Russel-Silver Syndrome and dwarfism. Free public education and exhaustive networking accomplished for the Magic Foundation - how cool! 7. Thanks to Connor's syndrome, I can now perform higher math functions when I calculate the calories, centimeters or BMI of Connor. I also have become more tech savy since I've needed to get a new computer and load or download info from Magic! 8. Connor has a set of cheerleaders at the Pediatricians office. We are no longer just a chart number. Due to frequent weigh in's, all the nurses know every precious inch of Connor and his latest weight stat too! 9. I love the movie, " Finding Nemo. " A little fish with asymetry who could do anything he put his mind to despite his paranoid father. Although I identify to much with the Dad, I have so much hope for Connor thanks to that movie. 10. Finally, the number one reason I love being a parent to a child with SGA/RSS is HE BRINGS OUT THE PERFECTION IN EVERYONE HE COMES INTO CONTACT WITH. This is not symnpathy or pity. It's perfection. When other children drop down to their knees so they can be on Connor's level, that's perfection. When the nurses cry with you on a bad weigh in day, that's perfection. When you can finally, finally, get rid of the premie clothing and your neighborhood celebrates with you, that's perfection. When you go to church and find your son has been passed back nine pews because people just got to hold and love him, that's perfection. When your seven year old says, " I know, I know, I know, one mommy- three kids, I'll feed Connor his bottle; " that's perfection. When you hold your precious child and know that his love is unconditional for you and yet somehow, it completes you as a human being, that is the sweetest perfection of all. Grace and Peace to all, Kearns mother to Graham 7; Cameron 4; Connor 15 mo's - IUGR,SGA, Periactin and Zantac. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Thankyou . What a lovely thing to say! Eileen x Eileen x --------------------------------- Yahoo! Messenger - Communicate instantly... " Ping " your friends today! Download Messenger Now Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 ps. That top ten that wrote is really beautiful isn't it. Made me quite emotional too!! Eileen " Comrie, " b-comrie1@...> wrote: I'm going to have to stop reading these at work. This one made me cry. Although I have never met any of the people on this list serve in person, this is the strongest, most concerned, loving, tolerant, wonderful parents that ever existed. I wouldn't recognize anyone of you gals if I passed you on the street, except that you would be the ones with the biggest hearts. Regards, Comrie Top 10 Howdy Folks! In an attempt to put perspective in my life, I decided to come up with a Top 10 List as to why I LOVE BEING A PARENT TO A CHILD WITH SGA/RSS? Perhaps, after you all read my reasons, you'll add a few of your own. This list is is the spirit of the Dave Letterman show who always has a list for something. However, rather than be cynical, I thought I'd be ironic. I hope this brings a chuckle, may be even a few groans from parents who have been there and done that and designed the T-shirt. The point is, even though we do face challenges and emotional roller coasters, happiness, I have found is a choice - especially in the midst of caring for a child with special needs. Drum roll Please.....!!!!!!! 1. The clothing bill for Connor is non-existent. Since he is 15 months old but wearing only 3-6 mo clothes, I'm still opening things we got from the shower. 2. Emeril, the chef on the cooking channel can't hold a candle to me when it comes to (affect a snooty chef accent here) food texture! When your child can't even swallow vanilla pudding without gagging, I have learned to puree, saute, and pulverize all food down to it's sub atomic level so that my darling Connor can swallow it. 3. My vocabulary has increased dramatically. I now can pronounce and spell dysphagia, hyper-ciphosis, cryptorchidism, polymorphic markers on Chromosome 7 and finally my all time favorite, psedohydrocephalus. Please don't ask me to pronounce these things when I'm drunk.... 4. I appreciate more that excellent things always come in small packages. Connor is our joy. All 14 pounds of him. 5. Name any baby food, any variety or brand and I can tell you the nutrional and caloric content from memory! I am now learning the caloric contents to Mac n cheese, wendy's french fries, and pumpkin pudding bread which Connor gobbles us in short order. (No pun intended) 6. Since just about everybody is staring at Connor now, he has become a great conversational opener. Whether we are waiting at the car wash or at the public library, I ALWAYS end up in some educational conversation on Russel-Silver Syndrome and dwarfism. Free public education and exhaustive networking accomplished for the Magic Foundation - how cool! 7. Thanks to Connor's syndrome, I can now perform higher math functions when I calculate the calories, centimeters or BMI of Connor. I also have become more tech savy since I've needed to get a new computer and load or download info from Magic! 8. Connor has a set of cheerleaders at the Pediatricians office. We are no longer just a chart number. Due to frequent weigh in's, all the nurses know every precious inch of Connor and his latest weight stat too! 9. I love the movie, " Finding Nemo. " A little fish with asymetry who could do anything he put his mind to despite his paranoid father. Although I identify to much with the Dad, I have so much hope for Connor thanks to that movie. 10. Finally, the number one reason I love being a parent to a child with SGA/RSS is HE BRINGS OUT THE PERFECTION IN EVERYONE HE COMES INTO CONTACT WITH. This is not symnpathy or pity. It's perfection. When other children drop down to their knees so they can be on Connor's level, that's perfection. When the nurses cry with you on a bad weigh in day, that's perfection. When you can finally, finally, get rid of the premie clothing and your neighborhood celebrates with you, that's perfection. When you go to church and find your son has been passed back nine pews because people just got to hold and love him, that's perfection. When your seven year old says, " I know, I know, I know, one mommy- three kids, I'll feed Connor his bottle; " that's perfection. When you hold your precious child and know that his love is unconditional for you and yet somehow, it completes you as a human being, that is the sweetest perfection of all. Grace and Peace to all, Kearns mother to Graham 7; Cameron 4; Connor 15 mo's - IUGR,SGA, Periactin and Zantac. Quote Link to comment Share on other sites More sharing options...
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