Re: back with a new question

[Guest guest]

,

I would definitely look into what Paige said about a FAMIS or the

equivalent in your state. Also, look into SSI (disability payments

paid to disabled children, but it is income based). You can find

out more by calling . I know several families on this

list benefit from SSI.

Another option is calling Insure Kids Now at or

www.insurekidsnow.gov. This will put you in direct contact with

your own states children's health insurance.

Another program to look into is a Medicaid Waiver, which is

generally not income based, but each state runs it differently.

In our state, you get standard medicaid plus additional programs

such as environmental modifications, respite, nursing care, etc.

You can call 800-33-4227 or for more information.

Don't let the medicaid office say they don't have a waiver program.

Each state has one, but they don't all call it that. Sometimes it

is referred to as " Beckett " . You need to be persistent.

I hope this helps.

Alison