Re: My Mito princess goes to the ball!

[Guest guest]

O

Thanks for sharing. Times like this are so very important to them and

to parents who have struggled to get them to this point.

laurie

> Here is our Kira girl going to her Winter formal. We were not too sure

> she

> was going to make it. She has been sick for just about 4 weeks now. She

> came home very wiped out, but a very happy girl! She had a blast! She

> said

> she didn't use her wheel chair, but probably should have! We are so glad

> that

> this Mito stuff didn't steal this experience from her too! 15 years ago I

> never thought I was going to get to see this day for her. Thanks for

> letting

> us share our joy!

>

> Hugs

>

> O and Kira

>

>

> Kira is ready to go

>

> The long necklace helped to hide the scar from her open heart surgery.

>

> She loved the back of her dress. Hair done by mom! Not too bad for a

> novice! LOL

>

> The girls all met together to get ready. The boy pictures are coming!

> LOL

>

>

>

>

>

>

[Guest guest]

Hi ,

So glad that Kira was able to go to her Winter Formal. It is so important for

our young ones to have as normal of a life as possible. As we know it isn't

always easy to provide that for them especially with a disease that zaps our

energy like Mito.

I am sure that Kira had a great time getting ready for the Formal with all of

her friends.

Now rest and I am so glad you had such a wonderful time.

I wasn't able to see the photos that were sent... Did anyone else see the

photos?

Hugs,

Ann-Marie

My Mito princess goes to the ball!

Here is our Kira girl going to her Winter formal. We were not too sure she

was going to make it. She has been sick for just about 4 weeks now. She

came home very wiped out, but a very happy girl! She had a blast! She said

she didn't use her wheel chair, but probably should have! We are so glad that

this Mito stuff didn't steal this experience from her too! 15 years ago I

never thought I was going to get to see this day for her. Thanks for

letting

us share our joy!

Hugs

O and Kira

Kira is ready to go

The long necklace helped to hide the scar from her open heart surgery.

She loved the back of her dress. Hair done by mom! Not too bad for a

novice! LOL

The girls all met together to get ready. The boy pictures are coming! LOL