Thanks for the welcome!

[Guest guest]

Laurie, a, Joanne, Barb-

Thanks for your info and kind words. I really don't think I had symptoms until I

hit 30. I've

been looking at pictures, and my eyes seem normal up until my first wedding

anniversary,

and then it seemed like the progression was very quick, but limited. Other than

one more

burst of destruction in my left lid, both the ptosis and eye muscle immobility

seem to have

pretty much stopped.

Up until that time I ran, swam (went to nationals in college), did long distance

biking and

rowed on the crew team. I stopped being so athletic because I finally got done

with all my

schooling, got a real job, and became obsessed with earing enough money to buy a

house

It seems like things are accelerating now, and I find myself praying that I'm

being a

hypochondriac, and feeling things because I'm reading about symptoms. I do know

some

of the tiredness and muscle cramping is related to the hypothryroid problem, but

don't

know if that is caused by mito or a parallel disease. I can't explain the muscle

wasting

Right now, other than the fact that I have not yet seen anyone who actually

knows

anything about mito, I am most frustrated by how slowly the bureacracy works.

Every

appointment takes 2-3 months to get, there are mess ups with lab results, and

since the

docs clearly don't know anything about mito, they seem a pretty cavalier about

it all.

I'm sure this list does know more than most docs, and I am deeply grateful to

have found

it, and to the folks who run it.

Blessings to you all,

Kathleen

PS if i'm running on at the mouth here, I apologise. I've been trying to hold it

together for

my husband and family, and all I've read in research is enough to scare me

silly. It is a

huge relief to talk to real people who know what I'm dealing with and going

through, and

aren't in an even worse place knowledge-wise than me.

Thanks again, K