How old are most folks when symptoms begin?

[Guest guest]

Hi, Laurie-

Thanks for the welcome. How long have you been living with mito (I really hate

giving it a

cute nickname...)? Is it common for symptoms not to show up until your thirties

and later?

All I've found so far in my brief but fairly intense research are pretty scary

stories about much

earlier onsets of the disease.

I'm in the Sacramento Metropolitan area and there is only one Mitochondrial

specialist, a

reasearcher at UC , in the area. Northern California doesn't seem to have

a lot of

resources in general- three doctors in the San Francisco area and one at

Stanford. How far

do most of you travel for diagnosis and care?

I'm so glad to have found people to talk to. I've been slowly freaking out

since the

neurologist handed me my diagnosis last week.

Kathleen