Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Fran, Welcome to the group here. Boy, it sounds like you have your hands FULL! WOW! Anyway, I am mom to who is 20 months old and was just recently diagnosed with RSS by Dr. Harbison in New York on October 23. has had extreme problems with weight gain, despite a g tube, then to a j tube, now back to the g! Since seeing Dr. H., he has made some great progress and has gained 4 lbs. in three and a half months! This is great for him, considering when we saw her, he was gaining one ounce a week!!! He is on prilosec two times a day, even though the tests don't show reflux, but he has all the symptoms of reflux. He spits up a good bit and has trooube tolerating feeds. He doesn't eat anything by mouth and is fed 23 hours out of the day per tube. He seems to be one of the kids that get ear infections easily. He has had three in nine months. He also suffers from hypoglycemia, but not as bad as some of the others. Generally, he is healthy aside from the ear infections because he does not really go out in public, such as grocery stores or the mall. So, that is one thing that is on our side. I am sure if he was sick more, he would have the low blood sugar problem more often. will be weighed again tomorrow, but last weeks weight was 14 lbs. 10 oz, and he is 26 7/8 " long. I hope you Jacon and Lane are doing and feeling better! Take care, Jodi R. Yes, another Jodi!!!! Hope your not confused! LOL Quote Link to comment Share on other sites More sharing options...
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