PN variability

[Guest guest]

laurie

My PN comes and goes, too, but I have no idea whether this is correlating with

" cellular energy " because I'm unclear on what you mean, exactly, or how one

would measure it in oneself. Perhaps this would correlate with the internal

sense of " energy " , i.e. opposite of sleepiness or lethargy.

In my case, the VARIABILITY during the day and night, and over periods of days,

is EXTREME. Sometimes it hurts horribly, and sometimes it's nearly gone. The

only sure correlation I've found is that it gets worse with elevating my feet

(it frequently keeps me awake when I really need to sleep). There appears to be

some strong correlation with eating, but there are so many anomalies that I

really can't draw any good conclusions about types, frequency, quantity, etc. of

food, with regard to PN.

I do note one correlation, that being too warm generally, or especially warm on

my feet, is not good. I love most to be barefoot, or just in sandals, so I don't

like the winter and the need to wear shoes or even boots outside. And I sleep

with my bare feet sticking out from under any blanket, even in the rather cool

bedroom.

So, more questions come to mind, about what makes it worse one day and bad the

other. The main reason why I want to know, of course, is especially if there are

things I can do, or diet adjustments I can make, or anything else, to alleviate

it. The meds I've tried so far haven't done much, if anything.

I'd like to hear more from anyone, about what seems to make their PN worse or

better, any details.

Steve D.

Re: : MS

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> Hi ,

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> THere are a number of individuals that were originally diagnosed with MS

> and

> later diagnosed with mito. Retrospectively, I think that Dr. Cohen,

> SHoffner ,etc have told many of those individuals that the " diagnostic "

> MRI

> was incorrectly read and the " plaques " were actually lesions typically

> seen

> in patients with mito. If you have such an MRI, I;d consider having Dr.

> Cohen or Dr. Shoffer over read it, ie do an formal interpertation of an

> outside exam. Send the films with a clinical history and other

> diagnostic

> info.

>

> MitomomX3@... wrote: has anyone been diagnosed with MS and mito?

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