Re: Janet's friend in Chico

[Guest guest]

Thanks, Janet-

That would be wonderful!

Kathleen

> I have been communicating with a lady whose son is 21 and had seizures/a

> stroke and diagnosed with melas.

>

> I am in northeast Wisconsin but she lives in Chico. I will forward your email

> to her if you like. Just let me know. I know she is a nurse at a local

> hospital there. Maybe she knows of resources.

>

> Janet Sample

> How old are most folks when symptoms begin?

>

>

> Hi, Laurie-

>

> Thanks for the welcome. How long have you been living with mito (I really

> hate giving it a

> cute nickname...)? Is it common for symptoms not to show up until your

> thirties and later?

> All I've found so far in my brief but fairly intense research are pretty

> scary stories about much

> earlier onsets of the disease.

>

> I'm in the Sacramento Metropolitan area and there is only one Mitochondrial

> specialist, a

> reasearcher at UC , in the area. Northern California doesn't seem to

> have a lot of

> resources in general- three doctors in the San Francisco area and one at

> Stanford. How far

> do most of you travel for diagnosis and care?

>

> I'm so glad to have found people to talk to. I've been slowly freaking out

> since the

> neurologist handed me my diagnosis last week.

>

> Kathleen

>

>

>