Re: Univ. of Pitt's Children's

[Guest guest]

, Dr. Vockley used to be at Mayo Clinic and I know a number of

patients who saw him there and loved him. He is also the primary author of

one of the papers that included my case. He is very good by all accounts.

Glad you can get his input.

Take care,

Barbara

> Univ. of Pitt's Children's

>

> Hi-

>

> I've been offline for sometime due to losing my laptop computer.

> Accidently got dropped on the tile floor and had to be replaced. It's

really been

> difficult for me to adjust to using a deskptop again. I must have been

really

> spoiled with my portable.

> I'm feeling about the same. I see my surgeon on Tues for a recheck and

am

> going to see a GI at Cincy Children's on Fri. I'm still having pseudo

probs

> but better than with my colon. Just hate it that after 5 surgeries I'm

still

> having to take medications to have a BM.

> Dr. Cohen is referring me to a doc Vockley at Univ. of Pitts

Children's

> who is a biochemical geneticist. My records have been sent and am waiting

to

> hear back about an appt. He apparently does research into FODS and

carnitine.

> Have spoken to the NP and she was very nice. Has anyone heard of this doc

or

> seen him?

> Welcome to all the new members. We are having family visit from

Seattle

> this next week and with traveling to Cincinatti I'll prob not been online

much

> again. I think of you all and pray for you.

> Thanks.

>

>

>

>

>

[Guest guest]

Have a safe, helpful trip and enjoy the out of town family.

lauie

> Hi-

>

> I've been offline for sometime due to losing my laptop computer.

> Accidently got dropped on the tile floor and had to be replaced. It's really

been

> difficult for me to adjust to using a deskptop again. I must have been really

> spoiled with my portable.

> I'm feeling about the same. I see my surgeon on Tues for a recheck and am

> going to see a GI at Cincy Children's on Fri. I'm still having pseudo probs

> but better than with my colon. Just hate it that after 5 surgeries I'm still

> having to take medications to have a BM.

> Dr. Cohen is referring me to a doc Vockley at Univ. of Pitts Children's

> who is a biochemical geneticist. My records have been sent and am waiting to

> hear back about an appt. He apparently does research into FODS and carnitine.

> Have spoken to the NP and she was very nice. Has anyone heard of this doc or

> seen him?

> Welcome to all the new members. We are having family visit from Seattle

> this next week and with traveling to Cincinatti I'll prob not been online much

> again. I think of you all and pray for you.

> Thanks.

>

>

>

>

>