Re: Newly Diagnosed - Sad Husband

[Guest guest]

Welcome to the group. I hope we can be of help and we are definitely

good at giving support.

I don't have a spouse to deal with, but I know that I had to build new

interests and new traditions after my divorce. I had to do this again

as my mito has progressed. Getting my first scooter also allowed me to

do more things that I had been able to do, allowing me to regain some

of my previous interests.

laurie

>

> Hi - I've just been diagnosed and am looking for others to chat with

> who will understand. There's nothing unusual in my story - several

> years of perplexing symptoms and dozens of specialists until one

> intern finally asked the right question and sent me to Dr. Cohen at

> the Cleveland Clinic. At this stage, I'm having the most problems

> with fatigue, impaired cognition (used to practice law), bipolar

> symptoms, and tremors. I've also developed a heart block and

> arrhythmia, irritable bowel syndrome, and extreme sensitivity to

> medications. My current question is how your significant others have

> dealt with the diagnosis and whether you've found ways to help them

> cope.

>

> My husband and I have been together since high school and have had a

> very close relationship all these years. He's been terrific through

> all the years of looking for answers, (even when I was starting to

> think I was just a hypochondriac). Now that we have an answer,

> though, and it looks likely that the condition will continue to

> degenerate, he's having a very difficult time coping. He says it

> makes him sad that we're not able to do the things we used to

> together, that he's very afraid of being left alone, and that the

> financial issues have him stressed out. I've already been through a

> lot of adjusting to my new circumstances and keep counseling " optimism

> and humor " , but he keeps withdrawing, which is his usual way of

> coping. Any advice?

>

>

>

>

>

>

>

> Medical advice, information, opinions, data and statements contained herein

> are not necessarily those of the list moderators. The author of this e mail

> is entirely responsible for its content. List members are reminded of their

> responsibility to evaluate the content of the postings and consult with

> their physicians regarding changes in their own treatment.

>

> Personal attacks are not permitted on the list and anyone who sends one is

> automatically moderated or removed depending on the severity of the attack.

>

>

>

>

>

>

[Guest guest]

Welcome, I guess it's a road we all have gone down,

more down hill, but yet still climbing. I found that

chatting, or e mailing has helped me alot. I do alot

of reading, but just cant remember much at times.

--- Laurie Fitzgerald laurie.fitzgerald@...>

wrote:

> Welcome to the group. I hope we can be of help and

> we are definitely

> good at giving support.

>

> I don't have a spouse to deal with, but I know that

> I had to build new

> interests and new traditions after my divorce. I had

> to do this again

> as my mito has progressed. Getting my first scooter

> also allowed me to

> do more things that I had been able to do, allowing

> me to regain some

> of my previous interests.

>

> laurie

>

> On 5/22/06, sweeneyknits sweeney123@...>

> wrote:

> >

> > Hi - I've just been diagnosed and am looking for

> others to chat with

> > who will understand. There's nothing unusual in

> my story - several

> > years of perplexing symptoms and dozens of

> specialists until one

> > intern finally asked the right question and sent

> me to Dr. Cohen at

> > the Cleveland Clinic. At this stage, I'm having

> the most problems

> > with fatigue, impaired cognition (used to

> practice law), bipolar

> > symptoms, and tremors. I've also developed a

> heart block and

> > arrhythmia, irritable bowel syndrome, and extreme

> sensitivity to

> > medications. My current question is how your

> significant others have

> > dealt with the diagnosis and whether you've found

> ways to help them

> > cope.

> >

> > My husband and I have been together since high

> school and have had a

> > very close relationship all these years. He's

> been terrific through

> > all the years of looking for answers, (even when

> I was starting to

> > think I was just a hypochondriac). Now that we

> have an answer,

> > though, and it looks likely that the condition

> will continue to

> > degenerate, he's having a very difficult time

> coping. He says it

> > makes him sad that we're not able to do the

> things we used to

> > together, that he's very afraid of being left

> alone, and that the

> > financial issues have him stressed out. I've

> already been through a

> > lot of adjusting to my new circumstances and keep

> counseling " optimism

> > and humor " , but he keeps withdrawing, which is

> his usual way of

> > coping. Any advice?

> >

> >

> >

> >

> >

> >

> >

> > Medical advice, information, opinions, data and

> statements contained herein

> > are not necessarily those of the list moderators.

> The author of this e mail

> > is entirely responsible for its content. List

> members are reminded of their

> > responsibility to evaluate the content of the

> postings and consult with

> > their physicians regarding changes in their own

> treatment.

> >

> > Personal attacks are not permitted on the list

> and anyone who sends one is

> > automatically moderated or removed depending on

> the severity of the attack.

> >

> >

> >

> >

> >

> >