Re: advise needed - urgent

[Guest guest]

My son is still in the shoes 23/7 so I'm not sure of everything, but I

saw urgent and thought I'd try to give you some place to look. Try

looking at past posts and entering curling toes in the search. Other

parents have mentioned curling toes before and that sounds like what

your son is doing. Also call your DR in the morning and express your

concern with your son not being able to keep the shoes on and mention

the toe curling.Don't give up hope there's help and tomorrow more

people should chime in with their experiences.

Holly son athan LCF DBB 23/7

>

> Hi,

> My son(unilateral, age 1 year 3months) is in the shoefor only nap

time

> wear. I was able to cope up when it was 23 hrs dailyfor 3months. But

> now askinghim to wear during naptime is becoming a real problem. He

> just wont wear them. I am able tokeep him in the shoe for only 6 hrs

a

> day. He started to walk and he is walking fine. But when he is awake

> only, he tries pull the foot or toes in. During sleeptime, his foot

> looks perfectly ok and there is no sign oftrying to pull it inwards.

> So, what do u advise? Isn't the shoe only to prevent relapse during

> sleep? what am i to do?

> thanks.

[Guest guest]

Hi,

My DD is also just over 1. She goes through phases where she hates the

shoes and then other times doesn't seem to mind them. When she is in a

bad phase I just wait until she has been sleeping about a ½ hour then

go in and put the shoes on and she hardly ever even wakes up. The

shoes are very important, if he relapses he will have to go back into

casts or have surgery. I am sure you don't want to have to try and

deal with him in casts when he can't walk or move his legs much at

all. Keep trying to put them on him as much as possible. Just

remember that you are doing what is best for him and sometimes you

might have to listen to him fuss about his shoes. Good luck!

[Guest guest]

Hi there,

I'm sorry to hear that you are having such trouble with the FAB. I AM

a little concerned with the number of hours that he is wearing the

brace though. How many hours per day was recommended by your sons

doctor? I have never heard of any Ponseti doctors prescribing the

brace for naps only....it would usually be nights and naps which

usually equals 12-14 hours. At the very least, nights only would be

the recommendation until brace wear is discontinued.

I don't mean to alarm you but it is well documented that non-compliance

with the brace will in most, if not all cases, lead to a relapse of the

deformity.

What doctor does your son see? It may be worth getting a second

opinion or getting further treatment.

Daiga and Owen, 02/04/03

Unilateral LCF, FAB 14/7

>

> Hi,

> My son(unilateral, age 1 year 3months) is in the shoefor only nap

time

> wear. I was able to cope up when it was 23 hrs dailyfor 3months. But

> now askinghim to wear during naptime is becoming a real problem. He

> just wont wear them. I am able tokeep him in the shoe for only 6 hrs

a

> day. He started to walk and he is walking fine. But when he is awake

> only, he tries pull the foot or toes in. During sleeptime, his foot

> looks perfectly ok and there is no sign oftrying to pull it inwards.

> So, what do u advise? Isn't the shoe only to prevent relapse during

> sleep? what am i to do?

> thanks.