- gastric emptying

[Guest guest]

- I know one of the biggest differences with Dr. H's test and

others is that she requires that MILK be used for the test, NOT

barium. Her reasoning is that why test with a product that a child

wouldn't be eating or drinking under normal circumstances!!!!

We are very new to delayed gastric emptying. I can only tell you

the couple tidbits of info Dr. H relayed to us this past visit.

1) For , because she is currently gaining weight and her

reflux is UNDER control with the meds (first emptying test indicated

bad reflux, new meds given, this test showed NO reflux!!!!), Dr.

Harbison wants to do NOTHING medically except continue the Miralax

for GI constipation/health. (and of course continue all other

meds).

2) She did say that if the child was failure to thrive, reflux was

fine with meds and still not gaining, then pyloroplasty may be

considered (surgical fixing). There is also medication one can use

to help speed up emptying times, but she didn't mention it, and our

local GI out here VERY MUCH was against it. Can't recall the med

name, but he said there were some not good side effects from it, and

that he personally wouldn't put a child on it for life (since

delayed emptying is congenital and wouldn't change with age) instead

of just fixing the problem.

3) For because she does suffer from sudden onset

hypoglycemia, especially with exertion/heat, this was the most

important impact of the DGE. If we try and give her food to get her

blood sugars up, but she has intermittant DGE and the food just sits

there, her blood sugars will crash. We can no longer count on food

as a safety net for sudden hypoglycemia. So we now have glucogel

and/or frosting gel that we put in her cheek in emergencies.

still has to eat every hour (Dr. H says that 's body

has learned to eat small amounts every hour in order to balance both

the reflux and the delayed gastric emptying, so that she is never

too full).

Good luck, !!! For those of you who don't know, and

W. and several other parents are literally changing the New Zealand

medical system on their own!!!! They are battling the entire

country for getting approval for growth hormone for SGA children.

These moms who just years ago knew nothing about RSS/SGA are

changing the future for their children and others. Go ladies!!!!