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Re: Pain Barbara

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No special tests other than the usual raft of mito stuff, just trial and

error. For example in 1988 I started riboflavin and within a short time had

substantial relief from pain and big improvement in weakness and tolerance

for activity. That was the first clue that the best way to reduce my

symptoms was by boosting the impaired metabolic pathways. (Riboflavin is

cofactor for many pathways involved in fat metabolism and also for complex

I.) Rx potassium has provided a similar relief for my neuropathic symptoms

such as burning and hypersensitive skin. (I had a 20-year history of low

potassium which had not been treated.) I also respond well to creatine

monohydrate and phosphates combined, the idea being that it boosts ATP

(muscle fuel) by increasing phosphocreatine stores in muscle, an alternate

source of ATP. The idea is that providing more available fuel reduces the

metabolic stress that induces the pain, weakness, etc. Food is very

important for me too---what I eat makes a big difference in how I feel.

However, I will say that from my years of networking, probably I am more

responsive to co-factors than most mito patients. Some of these treatments

have given me sustained dramatic improvement and I don't often hear those

kinds of stories here.

Barbara

> Barbara, How did you discover that metabolic support would help ypu?

> Did you have diagnostic tests and if so what tests?

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