Re: Frustrating Doctor's Visit

[Guest guest]

,

It sounds like your children's4 pediatrician isn't helping them in any way.

I know how frustrating that is, we've had similar experiences.

It's a pain in the rear, but if you are in an area where you have a good

supply of Dr.'s then start looking around for another one. Interview them

over the phone so that you don't have to wait for an appointment. Look for

a D.O. or even a non-Dr.

I know not everyone wants what I have but my kids see a Nurse Practitioner

who is fantastic. She doesn't know much about Autism, her specialty is

premature babies but because of her attitude (trust the parent) I pretty

much begged her to take on my children. The first time I talked to her

about the tests I'd like to have she started referring me out to

specialist. Now the specialist are scoffing at me, but at least I know the

NP will fight for what my son needs.

We have gone through so many pediatricians! I've pretty much written most

of them off at too arrogant to be of any use to my children. I'm going to

be looking for a DAN dr. in addition to the Nurse Practitioner. I'm

hopeful that soon I'll have the support my son needs.

All the best to you,

Jeannie

[Guest guest]

, these types of doctors are just passing on what they have learned.

Let her have a child with autism or one of her close friends or relatives

and she will be more willing to learn just what works with autism. My

oldest daughter was in Medi-Vac and she listened plenty to what the Air

Force had to say but she was also in the Reserves. When she volunteered for

Desert Storm, for only a month, she had to get the hepatitis vaccine. She

saw how sick the booster was making her tent mates and she told that she

would pass of the booster. When you see the reality with your own eyes,

your attitude changes.

Isn't it wonderful that she won't 'discouraged' you from doing it?

Betty

----- Original Message -----

> I just went to the pediatrician on Friday for my daughter's 7 month

> well check up. I mentioned to the doctor that I had put my 3.5 yo ASD

> son on the gfcf diet a month ago and that I had already seen increased

> communication and eye contact. She poo pooed the whole notion of the

> diet, but said she wouldn't discourage me from doing it.She also said

> she didn't believe in all the " hype " around the MMR vaccines and that

> my son was going to be this way no matter what shots he had or what

> diet I have him on. And that the increase in diagnosis is just because

> doctors know to look for it more. (BTW, she didn't diagnos my son, I

> had him evaluated myself and she was surprised to learn he had PDD-NOS)

> My son also had started preschool around the same time as I started the

> diet. She said the improvements I saw were because of school. I'm

> sorry, but five days of preschool (2.5 hrs/day) would not have such a

> quick impact on my son without the diet. She also said therapy and

> school would help my son more than the diet. I know that everything I

> do will help my son, but the diet is something I'm not giving up. And

> after reading all the strides everyone else's kids are making with this

> diet, how can someone say this diet doesn't work. (She also told me not

> to believe everything I read on the web.) I felt very frustrated. This

> is the doctor who had no problem ordering tons of blood tests for my

> then 3 week old daughter who had a low hematocrit count, a very

> intrusive test for my son when he had a urinary tract infection and she

> also told me I need to supplement with vitamin drops because I'm solely

> breastfeeding. What is up with these doctors? They have no problem

> poking and pricking our children, but when there's a less intrusive

> approach to helping them, they're against it.

> Sorry to be so long, just needed to vent.

>

> MA

> 3.5 Otis (PDD-NOS)

> 7 mo. Romy

[Guest guest]

> she didn't believe in all the " hype " around the MMR vaccines and

that

> my son was going to be this way no matter what shots he had or what

> diet I have him on. And that the increase in diagnosis is just

because

> doctors know to look for it more. (BTW, she didn't diagnos my son,

I

> had him evaluated myself and she was surprised to learn he had PDD-

NOS)

-

Sorry you had a bad experience, but I am not surprised. I do love

that she said that the doctors know what to look for - my son was not

diagnosed by our pediatrician either. Our ped told us that his loss

of language was due to us pressuring him to talk. Thanks.

So - they are full of it if they are taking credit for being more

aware and better able to diagnose. As if parents in the past had

ignored or not looked into what was going on with a child who lost

language. Bunch of hog wash.

Moira (who has come to the realization that doctors are in fact

human.)

[Guest guest]

Welcome to the CLOSED minded world of the current Pediatric medical

community. I went to a Gastrointerologist for my son and he told me to

bring in a stool sample so that he could analyze it. Guess how he

analyzed it? He LOOKED at it and threw it in the trash! My regular

pediatritian POOPOOS almost every intervention that we are currently

doing, so when we go to see him, it's for things like check ups and the

occasional illness... otherwise we leave the " real " Doctoring to our DAN

Dr. who looks at every possible non invasive thing that we can do..

Don't give up on the diet...... Our son was finally able to make some

gains in receptive and expressive language with the diet. This was after

a good year and a half of ABA therapy. The diet was definitely the key..

and we also got Josh tested for food allergies and removed all foods that

he was sensitive to.

Take it from someone who's " BEEN THERE AND DONE THAT " ..... find yourself

a good Dr. who's not afraid to step outside of what he learned in medical

school. If you find a Dr. that places some stock in the diet, then I'd

say you've probably found a keeper. We drive 6 hours to see our

Allergist, but it's well worth it. We just keep our Pediatritian in town

and that way if Josh needs to see a Dr. he's there. I just keep the

conversation light and I don't share our progress with the diet. He

really doesn't want to hear about it anyhow.

Best wishes to you. Sorry about your frustrating experience. Stick with

this group... They are great.

Leigh

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