Re: Debbie re Cleveland Clinic

July 17, 2005

Marla

I really like Dr. Cohen, but he is next to impossible to see. Even

once you have an appointment, it might get changed.

I understand your being tired of going from doc to doc. I did that for

15 years before going to Atlanta and having a fresh biopsy to finally

get a diagnosis. I hope it doesn't take you that long.

laurie

> Debbie- I live in Ohio, right on the state line of PA. I went to

> Cleveland Clinic first and had a terrible experience. So I asked to go

> to UPMC this time. I just wasn't prepared to see Dr. Lacomis at the

> EMG. I didn't realize that he was going to make a determination right

> on the spot, I would have hoped for an office visit. I think I've

> blocked out the name of the doctor I saw in Cleveland, but it wasn't

> Cohen. Do you like Dr. Cohen? Does he listen and take time with you?

> The MDA health coordinator for my area wants me to go to the Cleveland

> docs if I don't have any luck with Lacomis. I'm just sick of going to

> different doctors and getting either no diagnoisis or the wrong one.

> Marla

>

> > > I saw Dr. Lacomis at the Universtiy of Pittsburgh (PA) Hospital

> > > yesterday. Does anyone else go there to the MDA clinic??

> > > Marla

> >

> > Hi Marla,

> > I live in Mercer, Pa. I too have seen Dr. Lacomis about 6 years

> > ago. I now go to the Cleveland Clinic to Dr. Bruce Cohen.

> > I am 50 and diagnosed for about 5 years with Mito. Do you live

> > near Pittsburgh?

> > Debbie

>

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