Re: Storm's Endo appt.

[Guest guest]

I am so glad that you have someone so awesome! Eli Lilly makes the

Injectease - their growth hormone brand is Humatrope. I have been

told that the pen is usually better for older children, whose dosage

increases are not in such minute amounts, whereas the syringe is

better for smaller/younger children, whose weight is lower and the

GH dosage increases can often be so very small (e.g., 24 units to 25

units).

Jenn

> Hey people!

> Hope all are doing well! We went to our local endo and saw the

nurse

> practitioner! (Love them!!!)

> Anyhow, Storm has grown an inch in 3 months according to their

> measurements! (I just don't see it!) He is still at 50 pounds on

> their scales, so no weight gain in 3 months (this is actually

okay!)

> She did not see any of the usual changes for adrenarche or puberty

> even though he is getting some pimples and underarm odor, so she

went

> ahead and ordered blood tests for hormones, etc. (Dont' know if

that

> is good enough!)

> She is going to an Endo Conference in San Diago next week and says

> she was going to look for Dr. H and see if she is there. She also

is

> considering going to the MAGIC convention!!!!! I will be talking

to

> her again in two weeks to discuss Storm's recent headaches and I

will

> give her all the information then!

> Funny how sometimes Dr. H says it is her " voodoo " medicine,

because

> that is what the Nurse Practitioner said also!!!

> Well, she kept Storm at the same dose for a change and in the next

> couple of months we are going to be deciding wether to switch to

> suringes instead of the pen device. Anybody know who makes the

> injectease? She was interested! Anyhow, I find that the nurse

> practitioners are much better listeners than the actual doctors in

> the Endo clinic! We actually see them more often too! And they are

> interested in what Dr. H does to treat these RSS kids and willing

to

> listen! AMAZING!!!!

> Anyhow, still concerned about Storm's possible adrenarche and his

> recent attitude issues, although I guess I would be pretty grumpy

if

> I was having headaches a lot too! We may have a reaction to the Gh

> with these headaches, and so we are having to keep a headache

diary.

> Will let you all know what we find out!

> Blessings,

> Carmen, Mom to Storm, RSS, 50#, 48 "

[Guest guest]

Hey Carmen-

It is always a very long wait to see dr. Willcutt's ..Isaac's first

appointment when he was 1 month old we waited 2 1/2 hours! Since we

go every other month I finally asked the nurse..is he always behind

and she smiled and said that he doesn't believe in " fast food

medicine " . He has even called me at home on Saturday after the

convention to tell me that he read all of the articles I copied for

him from Dr. H (the one for parents with newborns and RSS, use of

cornstarch, peractin)and he was really glad that we found Dr. H...we

ended up talking for 45 minutes!!!

He has his PHD in pediatric endocrinology and from what I have heard

he is the best in our area.

Glad your visit was good...Congrats on the news!

Take Care,

Mimi