Re: infections, especially oral

[Guest guest]

HI, Ann and Everyone

I am glad you are feeling somewhat better. Your story is very

interesting for me. I had a chronic sinus infection which was

undiagnosed for a long time, and I am only now sure it was longstanding

because the symptoms finally got so bad that the ENT could " see "

something, and the antibiotics did clear it up. Looking back, I am

sure it was lower grade for a long time, because I had the same

symptoms, just a little less so. When it finally flared, I felt really

really AWFUL. Could have been mistaken for a mito flair, crash, etc.

The ENT said " infections can make you feel like that sometime. " You

can believe that I will now hunt down any other sub grade infection

more vigorously.

Interestingly enough Naviaux spoke on that topic in St. Louis, and I

just got his tape the other day. His take, as well as I can interpret

it, is that infections, especially viral, but he did not exclude

others, can exacerbate mito problems and cause major losses in mito

patients. He had statistics on a small population of known mito

patients. In the past I have had major setbacks near the onset of

other infections, but they were garden variety, small, and I did not

make any connection. From his position and my own very dire recent

experience, I will now watch infections very very closely.

That brings me to my question to you, Ann. Could you tell me what kind

of oral infection you had? I ask because just 2 weeks ago they found a

cracked tooth with major abscessing. I had it pulled. The dentist said

I had major bone loss due to the infection (so therefore it had been

there for a while) but was not too concerned. I asked how the

infection will be cleared from the bone, but got no satisfactory

answer. In the light of the above concerns, I am wondering how to take

care of this further. Does your experience shed any light on this?

Since my teeth are old and many capped, I have always wondered how to

identify a problem early, but have not gotten any satisfactory answer

on this from several dentists, and indeed the recent problem was not

caught early. They just don't seem to think dental abscesses can cause

major health problems, and that does not seem logical to me.

Any thoughts on this issue would be appreciated.

Regards to all

Sunny

> Hello,

>

> Some of you may know me and most may not. My name is Ann and I'm a

> mom with Mito. Diagnosed in 2003 with Mitochondrial Myopathy, it was a

> bittersweet day: 1. because there is no cure or treatment. 2. I found

> somewhere I belonged.

>

> For years I had fatigue, pain in my legs and spine, eye flareups; you

> name it, I probably had it. I went through the ringer of tests and had

> been diagnosed in previous years as a " probable " MS patient. I had the

> symptoms, just never had the test to prove it. So in 2002 I met with a

> new doctor at the MS Clinic who began looking into rare illnesses. And

> well, that is how I got my diagnosis-shortened story, of course. 

>

> 2005:

> In April-Following extensive oral surgery, 2 dental offices put me

> under the assumption that I was probably misdiagnosed with Mito. My

> health significantly improved: making a 180 degree turn.  In August-My

> pulmonologist said prior to the surgery-the infection could have

> combined all the Mito symptoms into one front, causing my health to

> rapidly decline. He said he was unsure of a misdiagnosis. But given my

> current state of health, he did give me a positive outlook for the

> future.

>

> So where does this leave me? Knowing I am no worse off mentally than

> when I received my initial diagnosis. I know where I started and where

> the road was going in April. And hey if my health starts to decline,

> it isn't like I have been there before. " Been there, done that "   I can

> say to myself and hopefully gain some insight I may not have had the

> last time.

>

> --

> By trade, I am a freelance writer and author. Whatever the

> opportunity, Mitochondrial Disease Awareness is one topic that lays at

> the forefront of what I believe in.

>

> Guess that's it...for now anyway.

>

> Sincerely,

>

> Ann

>

> All new (www.HeartbeatsForMito.org) featuring 33 children affected by

> Mitochondrial Disease

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