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Re: Chat to Jennie

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I'm glad it helped Beth! Lindsey talks like a much younger child,and shes been

in speech therapy since she been 18 months old. Do you have a hard time

understanding your son at times?

How big is he by the way? Is he on GH?

Just wondering since our kids are the same age!

Jennie

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Jennie,

Matt is 7 years, 5 months. He is not RSS, but SGA. He has been on

GH since last June. We are late starters at this. Matt was

adopted, was always small and the doctors just felt he would always

be small. We have come to realize his reflux he had his first year

of life never went away and now have a kid who doesn't like to eat,

has no appetite and is small.

So, we are on GH, allergy meds for his food allergies, acid meds for

his stomach, Periactin for appetite, and Ritalin for his ADHD, so

medically we have things covered. But he needs speech and OT and

PT. We live out of the country and need to get back. Mexico is

great, and we have had tons of fun, but they don't have any kind of

school services like Matt needs. I can understand him, but other

people have a hard time. I always thought he was lazy or in too big

of a rush to pronounce clearly, but I am thinking there is more to

it than that.

Right now Matt is 115 cm tall and 20 kg, which is about 44 pounds

and 45 inches tall. I just posted new pictures of him in the Photo

section under Matt H. It is a pre Gh and post GH picture.

What grade is in? I am worried about what grade he will be

placed in when we get back to the states!

Beth

> I'm glad it helped Beth! Lindsey talks like a much younger

child,and shes been in speech therapy since she been 18 months old.

Do you have a hard time understanding your son at times?

>

> How big is he by the way? Is he on GH?

>

> Just wondering since our kids are the same age!

>

> Jennie

>

>

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He's a handsome boy, Do you think he might have RSS?

Lindsey was diagnosed with RSS a few years ago, but I still have my doubts. I

personally feel shes too big! The genetics Dr said if it wasnt for her dad being

6'3 she would not be as big as she is...She does have many RSS traits

regardless.

Lindsey is in first grade,she should be in 2nd. She's on strattera for ADHD and

Risperdal for OCD/Tics. Theres gone now thankfully. She will be starting

Zyprexa instead of Risperdal,because she is too skinny. She was 40 pounds

yesterday at the Drs office and 46 1/2 inches tall I think. The Zyprexa should

put some weight on her,he hopes.

I agree, your son needs the right therapies, Just continue to show him how to

say words correctly. Lindsey also gets OT and hippotherapy(PT on a horse)

Lindseys picture is in the file section I think. Shes changed some since they

are a little old. She is 7.9 now.

Jennie

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Jennie,

Dr H saw Matt at convention last year and said No to the RSS. I

really agree. At first I wondered, but he doesn't have any of the

facial/assymetry issues, but seems like he has everything else!

Can I ask what kind of school work your daughter is doing in the 1st

grade? I am worried that Matt is not up to speed on where he needs

to be to enter 2nd grade next year. You can email me privately if

you prefer: jhultq @infosel.net.mx, without the space.

Thanks

Beth H.

> He's a handsome boy, Do you think he might have RSS?

> Lindsey was diagnosed with RSS a few years ago, but I still have

my doubts. I personally feel shes too big! The genetics Dr said if

it wasnt for her dad being 6'3 she would not be as big as she

is...She does have many RSS traits regardless.

>

> Lindsey is in first grade,she should be in 2nd. She's on

strattera for ADHD and Risperdal for OCD/Tics. Theres gone now

thankfully. She will be starting Zyprexa instead of

Risperdal,because she is too skinny. She was 40 pounds yesterday at

the Drs office and 46 1/2 inches tall I think. The Zyprexa should

put some weight on her,he hopes.

>

> I agree, your son needs the right therapies, Just continue to show

him how to say words correctly. Lindsey also gets OT and hippotherapy

(PT on a horse)

>

> Lindseys picture is in the file section I think. Shes changed some

since they are a little old. She is 7.9 now.

>

> Jennie

>

>

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I don't mind saying Lindsey is delayed. She is in a kindergarten/first grade

class combined, but only her and another special needs child is the first

graders! There are like 110 words the first grader needs to know how to read.

Lindsey knows maybe 10.

This has been our main focus; getting this girl to read! She gets tutored at my

house 2 times a week and is making nice progress.

Jennie

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