Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Hi Everyone, 1. Debbie M. 2. Wrentham, Mass. about a 1/2 hour outside of Boston 3. We have three children. 11 yrs non rss, ANdrew 9 years non rss and Mollie 2yrs 3 months rss. 4. Mollie born at 36 weeks csection 3 lbs 6 oz. Had not been growing since 23 weeks. 5. She had an ngtube since 9 months and had a gtube placed last May. She is on zantac,reglan for a reflux that has gotten progressively worse. Periactin. we have done the polycose and mct oil as well.She currently is on 30 kcal neocate jr. 12- 14 hour feeds depending what she can tolerate. Nutropin .6 daily for pituitary dysfunction. Growth hormone deficiency. 6. She is treated at Children's Hospital Boston, Mass. Dr pleskow (GI). Dr Levine, endocrinologist. Dr Irons, genetiscist who made the diagnosis last July. Debbie M. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.