Guest guest Posted January 15, 2004 Report Share Posted January 15, 2004 Hi Amy, If you can't financially afford the trip to NYC coming up in Feb., then you can't. But, I would suggest that at some point you try to make the trip. You can wait to see Dr. H initially at the convention, but keep in mind she won't be able to do anything for him while you are there, since she won't be able to do testing or anything like that. She can give you ideas, and advice, though. She will probably suggest that you bring him to see her at some point. I, like you, was worried about the trip to NY, but I am glad we went. has gained 4 lbs. since seeing her at the end of Oct., beginning of Nov. And, let me tell you, that is amazing for him. So, she has helped us, and I know that others on here will tell you the same thing. So, I guess it depends on what you are looking for. Do you want her to confirm the RSS? Them I am sure she can do that for you at the convention. When the coworkers at my husbands work heard that I would be making the trip to NYC, they had huge fundraisers and we ended up with $2500.00 from them! Also, family memebers sent some funds our way. So, when people here about the situation and know that it is a Dr. that is the only RSS specialist, maybe they would help you out also!? Just a thought. Ken is right about angel flight, from what I hear. I met a mom in NYC that had used it to get to Dr. H for that trip. She ssaid they were great to her. So, maybe you could check in to that. Also, I hear that you need to call in advance for the McDonlad house. So, check into that also. I understand that it is a hard decision. I don't know if I helped. I probably just confused you further. You can email me if you want to talk further or express more feelings about this. I would love to talk to you and try to help and support you. rollison@ core.com without the space of course! ) Take care, Jodi R. 's momma Quote Link to comment Share on other sites More sharing options...
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