Re: Seizure medications, GFCF and comments about ketogenic diet

[Guest guest]

Okay, this is strictly anecdotal here, but I've been thinking a lot about the

premise of the ketogenic diet. Originally wasn't it that they noticed

children with seizures stopped having them while fasting? So they created

the diet to effectively create a fasting condition in the child.

When my children fast, many problems go away, not because they are in a

fasting state per say, but because they are not eating the foods that cause

them problems.

Having said this, I have a 7 yodd who started having seizures just before she

was 6. She is currently on Depakote (and had awful side effects with

Zarontin). I have put all three of my children (and myself) on the GFCF

diet. The difference in us all is incredible. I will concentrate on the

seizures only here however. On two occasions we have had major infractions

to the diet ... in one case my dd had two visible breakthrough seizures

within the next two days (absence type), and in the other case we're not sure

but she was in the spacey state that generally shows us that her medication

is not working. She finds math too hard (we homeschool) and her normal

logical thinking is seriously impaired. Her love of learning plummets. The

spaciness lasted for a few days and then she is fine. She has not had spacey

times during periods with no infractions.

She is on a very low dose of Depakote (blood level of 50) but it *seems* to

be more effective with the diet. Her ped. neurologist says *no way*.

So anecdotal, but I sure am wondering! Just for the record, she had milk

allergy, reflux has a child. I figured out the milk allergy but never fixed

the reflux. It disappeared, then shortly after her seizures started.

Coincidence??? Has anybody else experienced this?