G-d, Give me STRENGTH!!!!

[Guest guest]

I am about at wit's end. I don't know what to do to help Max and

I'm going crazy. I just want to run away and escape from it all!

Max had his PEG changed to a button yesterday (still g-j). The

anesthesia made him really nauseous, so he cried for a long time

until they found something that helped him. Then he was ravenous,

but feeling dizzy from the meds. Finally, after 3+ hours in

recovery, I said it was time to go home and I got him dressed and

took him home. (The prince would have stayed there all night if I

had let him! He had a comfortable recliner, a personal TV and the

attention of several Jamaican nurses who were ready to cater to his

every whim.) I was exhausted and told my husband NEVER to go out of

town again when Max has a medical procedure!

Okay. I slept in the afternoon, I slept last night and woke up

feeling refreshed. Was Max? No. He had to stay home because he

could barely talk from the intubation and he said he was still weak

and shakey. That was fair. It takes 24 hours to get the anesthesia

out of the system. But when I came home from work, he was a wreck!

He has terrible pains in his lower abdomen and is doubled over. I

called the GI who said to call Special Procedures where they put in

the button. SP said that they are sure the tubing is place inside

correctly and cannot explain the lower abdominal pains. Meanwhile,

Max is in pain, he is crying and doubled over and all I want to do

is run away!!!!! I've given him extra Miralax, I'm now going to

give him Advil instead of the Tylenol we were using.

As I said, I've had enough. Max has had enough. I want this all to

go away and let us be a regular family again. Is that possible?

Jodi Z.