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Braeden update

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Hi All,

I just wanted to do a quick post and let you know Braeden was

released from the hospital yesterday afternoon. We are all happy he

is home and we are thankful his hospital visit was only a week this

time. He lost a pound. Which doesn't sound like a lot but it is

about 18% of his body weight. He is in good spirits though and back

on full food. We were able to get a neurological consult when he was

in the hospital and the neurologists have agreed to see him and do

an e.k.g. to check and see if he is experiencing " petite mal "

seizures. This is great news because I've been trying to get him in

to see the pediatric neurologists and I was on a waiting list just

for an appointment and they are booking new patients for next year!

So, now we are actually going to get an e.k.g. done on May 4th.

Hopefully, now we can enjoy the coming spring and summer without any

hospitalizations. Braeden was going to be switched to a g-tube on

April 1st but, now his GI wants to wait a month because of his

recent hospitalizations. So, we are looking forward to that and

hopefully move him to bolus feeds. He really wants to move around

but, he gets tangled up in his feeding tube.

Thank you everyone for the prayers and positive support. This list

serve has been great for us!

Take care and God Bless,

Saundra, Mom to Braeden(RSS, 18pounds Prosilic, Mirilax, Levoxyl, 24

hour G-J tube fed Petamin Jr. 50CC/hour ) and Delaney 17 month old

twins

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Saundra,

I am just catching up, but I am sorry to hear about your sturggles

the past week with Braeden in the hospital. I did email you

privately just now, too! Take care and I hope all is better.

Jodi R.

> hi saundra!!

> i am glad to see that braeden is feeling better and is home!! good

> luck with your neuro visits hope you find out what is going on and

> what to do about it. keep us posted!!

> jodie

> (nicholas-6 nonrss, christopher-3 rss 23lbs 33 " ght genotropin .6,

> johnathon-9m nonrss)

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