Re: RSS possible for daughter-Hi

May 27, 2004

Hi :

Welcome to the group. We are sort of new to this whole thing as well. I

have learned so much from this group. There is always great feedback going on

here. I really had a hard time finding much helpful information anywhere (even

on the Internet). It does sound like your daughter has some of the signs of

RSS. It would be great if you could make it to Chicago in July (22-25). There

is a conference and Dr. Harbison an endocrinologist and a leading specialist

in the country will be there. She will examine your child for free and on top

of all that you can learn a lot more about what your daughter is going

through. She could at least give you a confirmation on your daughter. By the

way...Where are you from and do you mind sharing your daughters height and

weight

with us and is she on any meds or receiving any treatment at this time? I

would also go to The MAGIC Foundation's website and request an RSS packet it is

really great info! If you become a member (30 dollars a year) They will send

you free information any time you need them to and have a wealth of info on RSS

and other growth disorders. This is all a great start with your new journey!

Jordan (Mommy to Braxton (non RSS) and Hannah 3 3/4 (RSS 22.5lbs, 32 "

dx by a genetic specialist recently have not yet been to a ped.

endocrinologist still waiting on an appointment. Hannah currently drinks 6 cans

of

Pediasure and eats 6x small meals or snacks daily.) PS Dr. Harbison is not a

big fan

of Pediasure. This is one of the reasons we want to see her is to come up

with a plan B.

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