Re: er trip - JODIE

[Guest guest]

Hi Jodie,

I am SO sorry to hear that you had such a tough time in the ER this weekend.

I don't have any real advice for you, other than TO get an RSS pamphlet from

MAGIC and ALWAYS carry one with you! wrote a great post a while

ago, about the blue RSS pamphlet that the MAGIC Foundation puts out, and

keeping it with you. If I can find it in the archives I will post the

number.

Basically, you should always carry one of these pamphlets with you at all

time! It explains RSS, and our kids problems with hypo-g, and dehydration.

Under the title " What should I do if I think my SGA child has RSS? " the most

important line is under the subtitle of Prevent Hypo-g by: it states " making

prior arrangements with your doctor and local ER to start IV glucose if

feeding is impossible. " I make sure to take 's medical journal with

us every time he goes to the ER. Even if you haven't made previous

arrangements with your ER, you can hand them this pamphlet, with the most

important lines high-lighted, and it helps them know what to do.

Are you a member of MAGIC?? If so, you can call and they will send you the

pamphlet for free. I made copies of the pamphlet so that I have one in my

glove compartment, one in 's medical journal, one in my backpack,

etc... so that I always have at least one with me to give a Dr not familiar

with RSS.

Some Drs have this " god " complex going. I know that when we were in the

Navy, the first thing the Drs would ask me, if I took one of my kids to the

ER, was " Is your husband out to sea? " If you answered " yes " , then you were a

hysterical mother. I really hate having to deal with Drs like that!

I'll look for Jen's post, and let you know if I find it.

Pat (g-ma to , RSS, 2 years old!!, 20# 5.6oz, 29.1 " , Prevacid,

Singulair, GT)