Steph's response -- Important for every RSS parent

[Guest guest]

Steph - thank you for explaning this so well. I am going to print

this!!!

The big thing that happens so often for many of RSS parents is that

our children get vomiting/sick, are not able to eat, begin spilling

ketones (and may or may not have low blood sugar at this time,

because you could be giving them Gatorade only and so their blood

sugar levels may be low but still in the normal range -- but because

they are not eating any carbohydrates, the have no glycogen storage

after 4-6 hours, and hence begin spilling ketones).

The child at this point, if they can not eat, will need an IV with a

very high level of dextrose. The experts recommend D10 with

electrolytes.

You can ask MAGIC for documents #H-28 and H-43, as well as the blue

RSS brochure. Keep these documents on your person or readily

accessible. In any emergency, bring these documents with you to the

hospital or the doctor's office. THey are written by Dr. Harbison,

and explain things in a " physician manner " -- if your ER still has

questions, they can call Dr. H! HA!

It can be scary, because even when you know this well, it can all

slip your mind when some young resident at the ER is saying " we

think your child is just dehydrated " or " your child's blood sugar

levels are find, why don't you just keep giving him fluids and take

him home. " NOT!!!!

Salem

> > Since we're on the topic I would like to ask a question.

Christian

> just had

> > the flu last weekend. He started vomiting Fri. night. We were

> taking his

> > ketones all day Sat. He continued to vomit half the day on Sat.,

> but would eat

> > right after. Once I stopped giving him his bottle (of Ensure),

he

> stopped

> > vomiting. So, we gave him various things to eat. Topped off w/

a

> syringe (2 tsp.

> > size) of Gatorade. We called it his " medicine. " The odd thing

was

> that he

> > was acting perfectly normal on Sat. We decided, for the first

time

> ever, to

> > borrow a glucometer and measure his BSL. It came back as 86.

His

> ketones were

> > moderate all day, but he was keeping things down, etc. We tried

> through the

> > night to wake him and give him the syringe of " medicine " or

> something else, but

> > he would start to gag. So, by the time he woke up Sun. morning

his

> BSL was

> > 55. So, at 8:30 in the morning, he ate 2 popsicles and 1/2 a

candy

> bar. He

> > peed right after that and it was still moderate. But it had

been

> too soon after

> > for the food to have been effective. His blood sugar had gone

up

> to 205

> > immediately following. At 10:30 am, he peed again. But this

time

> his ketones had

> > gone from moderate to somewhere between moderate and large.

Also

> all morning,

> > even after the sugar, he was lethargic and even laid down and

took

> a nap

> > right after the 10:30 pee.

> > So, now you've got the history. Let me ask the question.

Why

> would the

> > sugar seem to make the ketones go higher? I know the BSL's and

> ketones are

> > related so I thought this would actually help. I've been

searching

> the internet

> > and cannot find the answer. It's probably something simple that

> I'm missing.

> > As I said before, did inform me of the complex

carbs

> and the

> > importance. And Christian did end up in the hospital overnight

w/

> an IV. It

> > gets better right? Thanks.

> >

> >

> > mom to ,6,non-RSS and Christian, 3, RSS

> >

> >

> >