Re: Appt. at Children's Hospital-NEED ADVICE

[Guest guest]

The best advice I can give which is from my experience dealing with many

doctors and therapist is the following:

1. Get dressed up: skirt or dress. The professional look gets you more

respect.

2. Have a 3 ring binder with all detailed medical information.

3. Have a list of questions and concerns that you have regarding your child's

issues.

4. try not to get frustrated with their bad bedside manners.

5. If there is something you don't understand then verify. Ex. Are you

stating that my child has .....? And if that is not what they meant they

will clarify the information.

6. Have a partner or friend go with you to take detailed information.

7. Make sure you let them know your feelings about medication.

8. Be positive and diplomatic not confrontational.

Good luck and let us know how things went.

Sharon

[Guest guest]

Another thing that helps is a small, pocket recorder. That way you can

remember exactly what they said later. However, docs refuse to allow

themselves to be recorded. Dr. Witznitzer in Cleveland did that. He was

ready to get up and walk out! That should have told us right off the bat

that he wasn't going to be much help.

Pat in Ohio

[Guest guest]

That is a shame that these things happen to us. We need to have an advocate

or a stenographer with us at all doctor appointments. That will be the next

thing we should ask for from our providers. ha ha ha.

Doctor's like to make comments and not be held accountable. After our

appointment I come home and review my notes and if need be I send an e-mail

or letter to the doctor confirming things.

We have found great doctors and they are extremely helpful and supportive.

Good Luck

[Guest guest]

i don't have any advice on what to expect at the hospital, but see that you

mentioned that you are leery of conventional medicine. i don't know if you

would be interested, but i know of a classical homeopath in the Pittsburgh

area that is supposed to be wonderful and has stated many times that

homeopathy can do wonderful things with things like autism/aspergers etc. i

have only used limited homeopathic remedies for my sons colds, so i cannot

really comment of whether or not this type of treatment really works. i

just thought i would let you know about the homeopath in case it is

something you would like to look into.

if you want her name etc, you can email me.

tntdemer@...

Tammy & Noah

Bushkill, PA

Appt. at Children's Hospital-NEED ADVICE

> Hi everyone!

>

> I am relatively new to this group and would like to be

> prepared for my first appt. at Children's Hospital in

> Pittsburgh, PA at the Pediatric Development Center.

> This will be the first formal evaluation my son will

> receive to confirm the school's diagnosis that he has

> Asperger's.

>

> We have been GFCF since St. 's Day, 2001 and he

> has shown some improvement. We had been about 75% of

> the way there prior to learning about this diet as we

> just thought he had food allergies and he has been on

> sublingual allergy extract treatment (a la Dr. Doris

> Rapp) since November, 2000 and a rotation diet. I

> didn't consider autistic spectrum at that time, but I

> can tell you last year when we went off milk, we

> experienced the dramatic improvement seen by those

> just starting the diet. So I know I am on the right

> track.

>

> Getting back to my original question, we are told that

> our appt. at Children's will last about 4-5 hours.

> During that appt. I understand that they will screen

> him for any and all possible physical problems, then

> we will move on to autistic symptoms. I'm not sure

> what to expect. Can anyone who has been through this

> tell me about their experience? Since this is

> basically traditional medicine, I fear that they will

> diagnose and then prescribe the " drug of the month " ,

> which I am totally against. He is doing extremely

> well just on the diet and allergy extract treatment

> and supplements. His attention span at school is of

> greatest concern. He is in Early Intervention classes

> 3X/week for 3 hours during which he receives OT and

> Speech.

>

> I have lots more questions, but this will be enough

> for now.

>

> Thanks for all the great recipes and support.

>

> Barbara (mother of , almost 5, suspected

> Asperger's)

>

>

> __________________________________________________

>

[Guest guest]

Hi Barb

We live in Pittsburgh also and our two sons both

are in the autistic spectrum. when we found out about

what was going on we were warned that Children's

Hospital is very pestamistic about the kids with asd's

if you find out that this is the case try doctor

Faber at Mercy. Good luck with everything.

Ruth and

--- Barbara Little barbylittle@...> wrote:

> Hi everyone!

>

> I am relatively new to this group and would like to

> be

> prepared for my first appt. at Children's Hospital

> in

> Pittsburgh, PA at the Pediatric Development Center.

> This will be the first formal evaluation my son will

> receive to confirm the school's diagnosis that he

> has

> Asperger's.

>

> We have been GFCF since St. 's Day, 2001 and

> he

> has shown some improvement. We had been about 75%

> of

> the way there prior to learning about this diet as

> we

> just thought he had food allergies and he has been

> on

> sublingual allergy extract treatment (a la Dr. Doris

> Rapp) since November, 2000 and a rotation diet. I

> didn't consider autistic spectrum at that time, but

> I

> can tell you last year when we went off milk, we

> experienced the dramatic improvement seen by those

> just starting the diet. So I know I am on the right

> track.

>

> Getting back to my original question, we are told

> that

> our appt. at Children's will last about 4-5 hours.

> During that appt. I understand that they will screen

> him for any and all possible physical problems, then

> we will move on to autistic symptoms. I'm not sure

> what to expect. Can anyone who has been through

> this

> tell me about their experience? Since this is

> basically traditional medicine, I fear that they

> will

> diagnose and then prescribe the " drug of the month " ,

> which I am totally against. He is doing extremely

> well just on the diet and allergy extract treatment

> and supplements. His attention span at school is of

> greatest concern. He is in Early Intervention

> classes

> 3X/week for 3 hours during which he receives OT and

> Speech.

>

> I have lots more questions, but this will be enough

> for now.

>

> Thanks for all the great recipes and support.

>

> Barbara (mother of , almost 5, suspected

> Asperger's)

>

>

> __________________________________________________

>

[Guest guest]

I would have them test for vitamin and mineral deficiences since you are

there. Most of oyr kids have these deficiences and this would help you

tremendously. Good luck,

Appt. at Children's Hospital-NEED ADVICE

> Hi everyone!

>

> I am relatively new to this group and would like to be

> prepared for my first appt. at Children's Hospital in

> Pittsburgh, PA at the Pediatric Development Center.

> This will be the first formal evaluation my son will

> receive to confirm the school's diagnosis that he has

> Asperger's.

>

> We have been GFCF since St. 's Day, 2001 and he

> has shown some improvement. We had been about 75% of

> the way there prior to learning about this diet as we

> just thought he had food allergies and he has been on

> sublingual allergy extract treatment (a la Dr. Doris

> Rapp) since November, 2000 and a rotation diet. I

> didn't consider autistic spectrum at that time, but I

> can tell you last year when we went off milk, we

> experienced the dramatic improvement seen by those

> just starting the diet. So I know I am on the right

> track.

>

> Getting back to my original question, we are told that

> our appt. at Children's will last about 4-5 hours.

> During that appt. I understand that they will screen

> him for any and all possible physical problems, then

> we will move on to autistic symptoms. I'm not sure

> what to expect. Can anyone who has been through this

> tell me about their experience? Since this is

> basically traditional medicine, I fear that they will

> diagnose and then prescribe the " drug of the month " ,

> which I am totally against. He is doing extremely

> well just on the diet and allergy extract treatment

> and supplements. His attention span at school is of

> greatest concern. He is in Early Intervention classes

> 3X/week for 3 hours during which he receives OT and

> Speech.

>

> I have lots more questions, but this will be enough

> for now.

>

> Thanks for all the great recipes and support.

>

> Barbara (mother of , almost 5, suspected

> Asperger's)

>

>

> __________________________________________________

>